An abnormal growth of the cells that comprise the tissues of the brainstem. While the tumor may be histologically benign, it can produce great morbidity due to its location. It presents most commonly ...
Comprehensive, easy-to-understand information about this condition
How we create this content →The documentation surrounding childhood brain stem glioma is limited due to the rarity of the condition, which affects a small number of individuals worldwide. This rarity makes it challenging to conduct systematic clinical studies and gather comprehensive data. Additionally, the lack of identified genetic factors and established clinical features contributes to the gaps in understanding this condition. However, ongoing research may provide new insights and hope for affected individuals.
To navigate your journey with childhood brain stem glioma, consider consulting with a pediatric oncologist who specializes in brain tumors. They can provide tailored treatment options and support. Additionally, you may want to explore clinical trials, which can be found on ClinicalTrials.gov. While there are no specific patient organizations identified, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can offer valuable information and support. Participating in research studies may also provide insights into the natural history of this condition.
There are currently 13 active clinical trials focused on childhood brain stem glioma. Two orphan drugs, A10 and AS2-1 Antineoplaston, have been designated for development. These trials may offer new treatment options and insights into the management of this condition. For more information on active trials, you can visit ClinicalTrials.gov and search for 'childhood brain stem glioma'.
Actionable guidance for navigating care for childhood brain stem glioma
To navigate your journey with childhood brain stem glioma, consider consulting with a pediatric oncologist who specializes in brain tumors. They can provide tailored treatment options and support. Additionally, you may want to explore clinical trials, which can be found on ClinicalTrials.gov. While there are no specific patient organizations identified, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can offer valuable information and support. Participating in research studies may also provide insights into the natural history of this condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The documentation surrounding childhood brain stem glioma is limited due to the rarity of the condition, which affects a small number of individuals worldwide. This rarity makes it challenging to conduct systematic clinical studies and gather comprehensive data. Additionally, the lack of identified genetic factors and established clinical features contributes to the gaps in understanding this condition. However, ongoing research may provide new insights and hope for affected individuals.
To navigate your journey with childhood brain stem glioma, consider consulting with a pediatric oncologist who specializes in brain tumors. They can provide tailored treatment options and support. Additionally, you may want to explore clinical trials, which can be found on ClinicalTrials.gov. While there are no specific patient organizations identified, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can offer valuable information and support. Participating in research studies may also provide insights into the natural history of this condition.
There are currently 13 active clinical trials focused on childhood brain stem glioma. Two orphan drugs, A10 and AS2-1 Antineoplaston, have been designated for development. These trials may offer new treatment options and insights into the management of this condition. For more information on active trials, you can visit ClinicalTrials.gov and search for 'childhood brain stem glioma'.
Actionable guidance for navigating care for childhood brain stem glioma
To navigate your journey with childhood brain stem glioma, consider consulting with a pediatric oncologist who specializes in brain tumors. They can provide tailored treatment options and support. Additionally, you may want to explore clinical trials, which can be found on ClinicalTrials.gov. While there are no specific patient organizations identified, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can offer valuable information and support. Participating in research studies may also provide insights into the natural history of this condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The documentation surrounding childhood brain stem glioma is limited due to the rarity of the condition, which affects a small number of individuals worldwide. This rarity makes it challenging to conduct systematic clinical studies and gather comprehensive data. Additionally, the lack of identified genetic factors and established clinical features contributes to the gaps in understanding this condition. However, ongoing research may provide new insights and hope for affected individuals.
To navigate your journey with childhood brain stem glioma, consider consulting with a pediatric oncologist who specializes in brain tumors. They can provide tailored treatment options and support. Additionally, you may want to explore clinical trials, which can be found on ClinicalTrials.gov. While there are no specific patient organizations identified, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can offer valuable information and support. Participating in research studies may also provide insights into the natural history of this condition.
There are currently 13 active clinical trials focused on childhood brain stem glioma. Two orphan drugs, A10 and AS2-1 Antineoplaston, have been designated for development. These trials may offer new treatment options and insights into the management of this condition. For more information on active trials, you can visit ClinicalTrials.gov and search for 'childhood brain stem glioma'.
Actionable guidance for navigating care for childhood brain stem glioma
To navigate your journey with childhood brain stem glioma, consider consulting with a pediatric oncologist who specializes in brain tumors. They can provide tailored treatment options and support. Additionally, you may want to explore clinical trials, which can be found on ClinicalTrials.gov. While there are no specific patient organizations identified, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can offer valuable information and support. Participating in research studies may also provide insights into the natural history of this condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 31, 2026
Consider asking your healthcare providers these condition-specific questions
Genetic and Rare Diseases Info Center
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.