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Open data on 10,888+ rare conditions. Plain-language, sourced, never gated — for patients, caregivers, clinicians, and the community.
Plain-language summaries, genetics, and research for every rare condition.
10,888 conditions
Patient advocacy groups, foundations, and community organizations.
1,288 orgs
Financial help, medications, and support for rare-disease families.
253 programs
Recruiting trials and study sites across rare disease research.
3,281 with active trials
Peer-reviewed research, organized by disease and topic.
17,883 disease landscapes
Updates from FDA, ClinicalTrials.gov, journals, and patient organizations.
Kisho compiles open data from MONDO, GeneReviews, ClinVar, ClinGen, FDA, NIH, ClinicalTrials.gov, PubMed, Orphanet, HPO, HGNC, and Congress.gov. Plain-language summaries, never paywalled. How this is built →