A multinodular intermediate fibroblastic neoplasm arising from the bladder. It is characterized by the presence of spindle-shaped fibroblasts and myofibroblasts, and a chronic inflammatory infiltrate ...
Comprehensive, easy-to-understand information about this condition
How we create this content →The documentation for bladder inflammatory myofibroblastic tumor is limited primarily due to its rarity, which affects fewer than 1 in 1,000,000 individuals worldwide. This extreme rarity restricts the scope of systematic clinical studies and comprehensive phenotypic documentation. As a result, there is a lack of established clinical features and genetic insights that could aid in understanding this condition better.
To navigate your condition effectively, consider consulting with a urologist who specializes in rare bladder tumors or a medical oncologist with experience in inflammatory myofibroblastic tumors. While there are no specific patient organizations identified for this condition, you can find general support and resources through the National Organization for Rare Disorders (NORD) at rarediseases.org. Additionally, inquire about any available patient registries or natural history studies that may provide further insights into your condition.
Actionable guidance for navigating care for bladder inflammatory myofibroblastic tumor
To navigate your condition effectively, consider consulting with a urologist who specializes in rare bladder tumors or a medical oncologist with experience in inflammatory myofibroblastic tumors. While there are no specific patient organizations identified for this condition, you can find general support and resources through the National Organization for Rare Disorders (NORD) at rarediseases.org. Additionally, inquire about any available patient registries or natural history studies that may provide further insights into your condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The documentation for bladder inflammatory myofibroblastic tumor is limited primarily due to its rarity, which affects fewer than 1 in 1,000,000 individuals worldwide. This extreme rarity restricts the scope of systematic clinical studies and comprehensive phenotypic documentation. As a result, there is a lack of established clinical features and genetic insights that could aid in understanding this condition better.
To navigate your condition effectively, consider consulting with a urologist who specializes in rare bladder tumors or a medical oncologist with experience in inflammatory myofibroblastic tumors. While there are no specific patient organizations identified for this condition, you can find general support and resources through the National Organization for Rare Disorders (NORD) at rarediseases.org. Additionally, inquire about any available patient registries or natural history studies that may provide further insights into your condition.
Actionable guidance for navigating care for bladder inflammatory myofibroblastic tumor
To navigate your condition effectively, consider consulting with a urologist who specializes in rare bladder tumors or a medical oncologist with experience in inflammatory myofibroblastic tumors. While there are no specific patient organizations identified for this condition, you can find general support and resources through the National Organization for Rare Disorders (NORD) at rarediseases.org. Additionally, inquire about any available patient registries or natural history studies that may provide further insights into your condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The documentation for bladder inflammatory myofibroblastic tumor is limited primarily due to its rarity, which affects fewer than 1 in 1,000,000 individuals worldwide. This extreme rarity restricts the scope of systematic clinical studies and comprehensive phenotypic documentation. As a result, there is a lack of established clinical features and genetic insights that could aid in understanding this condition better.
To navigate your condition effectively, consider consulting with a urologist who specializes in rare bladder tumors or a medical oncologist with experience in inflammatory myofibroblastic tumors. While there are no specific patient organizations identified for this condition, you can find general support and resources through the National Organization for Rare Disorders (NORD) at rarediseases.org. Additionally, inquire about any available patient registries or natural history studies that may provide further insights into your condition.
Actionable guidance for navigating care for bladder inflammatory myofibroblastic tumor
To navigate your condition effectively, consider consulting with a urologist who specializes in rare bladder tumors or a medical oncologist with experience in inflammatory myofibroblastic tumors. While there are no specific patient organizations identified for this condition, you can find general support and resources through the National Organization for Rare Disorders (NORD) at rarediseases.org. Additionally, inquire about any available patient registries or natural history studies that may provide further insights into your condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Consider asking your healthcare providers these condition-specific questions
AI-Generated Content: This summary was generated using AI. Always consult with qualified healthcare providers for medical guidance.
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.