Help families find
your organization
Patients and caregivers come to Kisho searching for support. Claim your verified listing so they can find you when they need you most.
Why list your organization on Kisho?
Kisho connects patients and families with the organizations that can help them most.
Get Found by Families
When someone is diagnosed with a rare disease, they search for support. Your listing helps them find your organization at the moment they need help most.
Verified & Trusted
A verified listing shows families they can trust your organization. Stand out with official verification and accurate, up-to-date information.
Become a Disease Steward
Help shape the information families see about your condition. As a steward, you can review and contribute to disease content, ensuring accuracy and relevance.
Understand Your Reach
See how many people are viewing your profile and finding your organization. Use insights to better serve your community.
Already in our directory?
We've compiled information about thousands of patient organizations from public sources. Search to see if your organization is already listed, then claim it to take control of your profile.
Search for Your OrganizationBecome a Disease Steward
Your organization knows your condition better than anyone. Help families by ensuring disease information is accurate, complete, and easy to understand.
As a steward, you can:
- •Review and suggest edits to disease content
- •Add resources and support information
- •Help prioritize which information matters most
- •Connect your organization to disease pages
Questions? We're here to help
Whether you need help claiming your listing, understanding stewardship, or have questions about how Kisho works, our team is happy to assist.
Looking for research partnerships or enterprise solutions? Visit our Partners page