Rare disease news, mapped to the diseases behind the headlines. AI-classified across pipeline, policy, funding, science, and community.
Be among the first to receive Kisho Intelligence Briefings
Showing 501–520 of 2589 stories
The CDC's NoroSTAT provides weekly updates on suspected and confirmed norovirus outbreaks across states, enhancing public health monitoring. This data is crucial for informing policy decisions and outbreak response strategies.
The CDC has released new guidelines aimed at improving osteoporosis prevention and management. These guidelines emphasize the importance of early screening and treatment to reduce fracture risk among at-risk populations.
The CDC has released quarterly provisional estimates for selected birth indicators for Q3 2023. These estimates provide insights into natality trends, which may inform health policy and resource allocation.
The CDC has released technical notes regarding quarterly provisional estimates for natality in Q3 2025. This update provides insights into birth rates but lacks significant policy implications.
The FDA has released draft guidance for cuffless non-invasive blood pressure measuring devices, outlining recommendations for clinical performance testing. This guidance is currently not final and is intended to support premarket submissions.
The FDA has issued a 5-year debarment order against Tyler Jordan Hall for importing unapproved drugs into the U.S. This action underscores the agency's commitment to enforcing drug approval regulations.
The Federal Register has published updates regarding the Sickle Cell Advisory Committee, including amendments and renewals. This committee plays a crucial role in advising on policies related to sickle cell disease.
The Administration for Children and Families seeks a 3-year extension for the Congressionally Directed Community Projects information collection, with revisions aimed at simplifying application requirements. This extension is set to expire on March 31, 2026.
The Advisory Council on Alzheimer's Research, Care, and Services will hold its first meeting of 2026 to introduce new members and discuss strategies to alleviate the burden of Alzheimer's disease. This meeting aims to enhance collaboration among federal agencies in addressing Alzheimer's and related dementias.
The Administration for Children and Families proposes to resume data collection for Tribal Lead Agencies seeking to use Child Care and Development Funds for facility construction or renovation. This initiative aims to streamline the process and reduce administrative burden.
As of January 2025, the FDA has approved only one orphan drug class for alpha-1 antitrypsin deficiency (AATD) since 1987, despite 20 designations. The EMA has granted nine orphan designations for AATD but has yet to approve any.
A CDC report highlights the prevalence of violence perpetration among men aged 18-24 in low- and middle-income countries, linking it to childhood exposure to violence. This data may inform future policy decisions aimed at violence prevention and youth support programs.
The CDC reports on the performance of the CureTB program from 2016 to 2023, focusing on continuity of care for tuberculosis patients relocating internationally. This evaluation highlights the program's impact on patient management and health outcomes.
The NIH has announced a significant policy shift to end the use of human fetal tissue in NIH-supported research, redirecting focus towards next-generation validated research models. This change reflects evolving ethical standards and may impact future research funding and methodologies.
The United States has officially withdrawn from the World Health Organization, citing failures in handling COVID-19 and a desire to focus on bilateral health initiatives. This decision may impact global health collaboration and funding.
The CDC highlights the impact of cerebral palsy (CP) on movement, balance, and posture, emphasizing the need for increased awareness and advocacy. This group of disorders affects many individuals, necessitating ongoing support and resources.
The CDC provides an overview of cerebral palsy, detailing symptoms, causes, and treatment options. This resource aims to enhance awareness and understanding of the condition among patients and healthcare providers.
The CDC highlights key risk factors for congenital cerebral palsy and emphasizes prevention strategies before, during, and after birth. This information is crucial for healthcare policies aimed at reducing incidence rates.
The CDC outlines its commitment to public health and fiscal responsibility, emphasizing transparency and accountability to taxpayers. This initiative aims to enhance public trust and ensure effective use of resources.
The CDC has released new guidelines focusing on older adult health, emphasizing preventive care and chronic disease management. These recommendations aim to improve health outcomes for seniors across the United States.
Get the week's most important rare disease developments — pipeline moves, policy changes, and funding signals — delivered to your inbox every Monday.
Free weekly briefing. Unsubscribe anytime.