Rare disease news, mapped to the diseases behind the headlines. AI-classified across pipeline, policy, funding, science, and community.
Be among the first to receive Kisho Intelligence Briefings
Showing 1041–1060 of 2748 stories
A personal reflection on living with chronic illness highlights resilience and the importance of celebrating milestones. The author shares their journey of coping with health challenges over the past 15 years.
Today, CDC's Director Rochelle P. Walensky, M.D., M.P.H., signed a decision memo allowing Novavax monovalent COVID-19 boosters for adults.
Today, CDC's Director Rochelle P. Walensky, M.D., M.P.H., signed a decision memo allowing Novavax monovalent COVID-19 boosters for adults.
A personal narrative highlights the challenges faced by individuals with Primary Hyperoxaluria Type 1 (PH1). The story emphasizes the emotional and physical toll of living with this rare disease, aiming to raise awareness and foster community support.
A patient advocacy group collaborated with a family to transform their rare disease experience into a song, raising awareness and support for the condition. This initiative highlights the power of storytelling in the rare disease community.
An article discusses the qualities that differentiate good neurologists from bad ones, emphasizing the importance of effective communication and understanding in patient care. Personal anecdotes highlight the impact of these traits on patient experiences.
Today, the Centers for Disease Control and Prevention (CDC) and the Agency for Toxic Substances and Disease Registry (ATSDR), in partnership with the Department of Health and Human Services' Office of Environmental Justice, announce the release of the Environmental Justice Index (EJI).
Today, the Centers for Disease Control and Prevention (CDC) and the Agency for Toxic Substances and Disease Registry (ATSDR), in partnership with the Department of Health and Human Services' Office of Environmental Justice, announce the release of the Environmental Justice Index (EJI).
The article emphasizes the need to include rare dental diseases in disability discussions, highlighting personal experiences of individuals affected. It calls for greater awareness and advocacy for those suffering from these conditions.
A personal account highlights the unexpected reactions of castmates after a teacher inadvertently disclosed a student's chronic illness. This story emphasizes the importance of awareness and understanding in community settings.
The Feeding Tube Awareness Foundation highlights that around 20% of children under 18 are tube-fed due to over 350 conditions requiring nutritional support. This article emphasizes the importance of understanding and discussing feeding tubes for families navigating this medical intervention.
This briefing to update you on CDC's 2019 Novel Coronavirus response. We are joined today by Dr. Nancy Messonnier Director of CDC's National Center for Immunization and Respiratory Diseases and rear admiral Denise Hinton from the food and drug administrations, she is the chief scientist.
This briefing to update you on CDC's 2019 Novel Coronavirus response. We are joined today by Dr. Nancy Messonnier Director of CDC's National Center for Immunization and Respiratory Diseases and rear admiral Denise Hinton from the food and drug administrations, she is the chief scientist.
HHS Press Conference: Remarks at Coronavirus Press Briefing
Secretary Alex Azar will hold a press conference alongside CDC, NCIRD, and NIAID providing details on the Department's coordinated public health response to the 2019 Novel Coronavirus.
CDC will hold its annual gathering of past and present disease detectives April 29-May 2, 2019, in Atlanta. The 68th Annual Epidemic Intelligence Service (EIS) Conference will feature presentations on groundbreaking investigations and often life-saving outbreak responses by current EIS officers and their laboratory counterparts, the Laboratory Leadership Service (LLS) fellows.
Tickborne diseases increasingly threaten the health of people in the United States. The growing threat includes newly discovered disease-causing germs, an increasing number of reported tickborne illnesses, expanding geographic ranges for ticks, and a novel tick species found in the US.
Presentations include a wide range of health threats in U.S. and internationally
The number of adolescents who are up to date on HPV vaccination - meaning they started and completed the HPV vaccine series - increased five percentage points from 2016 to 2017, according to results from a national survey published today in CDC's Morbidity and Mortality Weekly Report (MMWR).
Of the approximately 4 million babies born in 2015, most (83.2 percent) started out breastfeeding - but many stop earlier than recommended, according to the 2018 Breastfeeding Report Card released today by the Centers for Disease Control and Prevention (CDC).
Get the week's most important rare disease developments — pipeline moves, policy changes, and funding signals — delivered to your inbox every Monday.
Free weekly briefing. Unsubscribe anytime.