Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
Each group is verified to help you connect with confidence.
Organizations keep their identity even when websites change.
Search by your condition, organization name, or location
FORCE is a patient advocacy organization focused on improving the lives of individuals facing hereditary cancer through support, research, and public policy advocacy.
RDCP:PAG0000090
The FOXG1 Research Foundation is dedicated to advancing research and advocating for patients with FOXG1 syndrome, a rare neurological genetic disorder, while supporting families worldwide.
FRAXA Research Foundation is dedicated to finding effective treatments and a cure for Fragile X syndrome, funding research grants and clinical trials to support this mission.
The FSHD Society is the world's largest advocacy and research organization for facioscapulohumeral muscular dystrophy (FSHD), providing support, resources, and advancing research for affected families.
The Fabry Support & Information Group (FSIG) raises awareness of Fabry disease, advocates for community needs, and provides support and information to affected families and individuals.
The Facial Pain Association (FPA) is dedicated to supporting individuals affected by neuropathic facial pain through education, resources, and community support.
RDCP:PAG0000083
The Familial Dysautonomia Foundation supports individuals affected by Familial Dysautonomia, a rare genetic disorder, by funding research, providing medical care, and offering social services and advocacy.
RDCP:PAG0000084
The FamilieSCN2A Foundation supports research and advocacy for SCN2A-related autism and epilepsy, providing resources and a community for affected families.
Family Caregiver Alliance provides support and resources for family caregivers, focusing on improving their quality of life and the care they provide to their loved ones.
The Family Resource Centers Network of California supports families of children with disabilities by providing resources, training, and advocacy to improve access to services.
Caregivers of New Jersey supports individuals with intellectual and developmental disabilities by providing access to services, respite care, and advocacy to help families navigate complex systems.
null
Family Voices is a family-led nonprofit organization that transforms systems of care to better support children and youth with special health care needs or disabilities, providing training and technical assistance to engage families in health care systems.
RDCP:PAG0000085
The Fanconi Cancer Foundation is dedicated to improving the lives of individuals affected by Fanconi anemia and associated cancers through funding research and providing community support.
Fanconi Hope is a charitable organization that supports individuals and families affected by Fanconi Anaemia, a rare genetic disorder, by providing resources, funding research, and maintaining a patient registry.
RDCP:PAG0000086
FDRS is dedicated to improving the quality of life for all people affected by adipose tissue disorders, including lipedema and Dercum's disease, through research, education, advocacy, and collaboration.
FEDER is a Spanish federation that supports individuals with rare diseases and their families, focusing on advocacy, education, and research initiatives.
This organization advocates for the recognition, inclusion, and equity for individuals affected by rare diseases in Colombia.
The Federation for Children with Special Needs provides information, support, and assistance to parents of children with disabilities, their professional partners, and their communities.
The Fibrolamellar Cancer Foundation is dedicated to finding a cure and supporting those impacted by fibrolamellar carcinoma through research and community engagement.
Join our directory to help patients and families find you. Registration is free and takes just a few minutes.