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Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
The Lymphoma Research Foundation is dedicated to supporting individuals affected by Hodgkin and non-Hodgkin lymphoma through education, community support, and funding research.
RDCP:PAG0000256
MAB Community Services provides support and rehabilitation services for individuals with disabilities, including vision rehabilitation for the blind and visually impaired, residential supports, and educational services for neurodivergent youth.
The organization focuses on supporting individuals affected by macular disease through research funding, providing information, and offering assistance to patients and their families.
This organization provides comprehensive information and resources related to various mental health conditions, including Alzheimer's Disease, PTSD, and Depression.
The MAGIC Foundation for Children's Growth supports children with growth disorders by providing advocacy, education, and resources for families navigating medical challenges related to endocrine health.
Make-A-Wish Connecticut grants wishes to children with critical illnesses, providing them with transformative experiences to improve their quality of life.
RDCP:PAG0000141
This organization supports individuals and families affected by Malan syndrome, a rare genetic disorder, through outreach, research, and community resources.
The MdDS Foundation supports individuals affected by Mal de Débarquement Syndrome (MdDS) through advocacy, awareness, and resources aimed at improving diagnosis and treatment.
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The Canadian Spondyloarthritis Association provides resources and support for individuals living with spondyloarthritis, including virtual support groups and educational materials.
The MASNS Foundation is dedicated to improving the lives of families affected by Marbach-Schaaf Neurodevelopmental Syndrome (MASNS) through community support, public awareness, and research advancement.
Marinesco-Sjogren Syndrome is a rare genetic disorder organization that provides information and support to families affected by MSS, facilitating communication between families, doctors, and researchers.
Istituto Mario Negri conducts biomedical research to improve health, focusing on understanding disease mechanisms and providing information and training to healthcare professionals and the public.
RDCP:PAG0000142
The Marshall-Smith Syndrome Organization of the USA provides support, research, and advocacy for families affected by Marshall-Smith Syndrome.
RDCP:PAG0000143
Mass General Brigham is an integrated health care system that offers a full range of care through its hospitals and community healthcare centers, focusing on research and clinical trials to develop new treatments and therapies.
Massé World is a public charity that provides aid, support, and education for individuals with vitiligo and albinism, aiming to end discrimination and promote personal development.
MastoKids is dedicated to providing help and support for families affected by mastocytosis, offering resources like a community membership and scholarships for students impacted by pediatric mast cell disease.
RDCP:PAG0000144
The Maternal Alloimmunization Foundation supports families affected by maternal alloimmunization and Hemolytic Disease of the Fetus and Newborn (HDFN) by raising awareness, educating patients and providers, and advocating for better care.
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