Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
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Organizations keep their identity even when websites change.
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The ME Association provides support and resources for individuals affected by ME/CFS and Long Covid, advocating for improved healthcare and conducting research to find effective treatments.
PKAVS supports individuals in Perth & Kinross by providing resources for carers, mental health support, mobility assistance, and community group guidance.
MEBO Research is a patient advocacy organization focused on initiating research into rare genetic metabolic diseases, particularly those causing systemic body malodor and halitosis, including Trimethylaminuria. They provide support and information through various studies and community engagement.
The MECP2 Duplication Foundation supports families affected by MECP2 Duplication Syndrome by providing information, resources, and funding for research aimed at finding a cure.
MECP2 Duplication UK is a charity that provides emotional, practical, and financial support to families affected by MECP2 Duplication Syndrome, while also raising awareness and promoting research into the condition.
RDCP:PAG0000146
The MED13L Foundation supports families affected by MED13L Syndrome, a rare genetic neurodevelopmental disorder, by providing awareness, family support, and advancing medical research.
The MEF2C Foundation focuses on accelerating research and developing treatments for MEF2C Haploinsufficiency Syndrome, a neurodevelopmental disorder, while providing support and information to affected families.
Mencap is a charity that supports individuals with learning disabilities, including Down syndrome and Williams syndrome, by providing information, advice, and advocacy services to help them lead fulfilling lives.
MG Ohio is dedicated to supporting individuals living with myasthenia gravis and related disorders through education, community programs, and advocacy.
The MHE Research Foundation supports individuals affected by Multiple Hereditary Exostoses and Multiple Osteochondroma, providing resources and information related to these conditions.
RDCP:PAG0000150
The MLD Foundation supports and empowers families living with Metachromatic Leukodystrophy (MLD) through community support, awareness initiatives, research collaboration, and educational resources.
MND Scotland is dedicated to supporting individuals affected by motor neuron disease (MND) through research funding, advocacy, and community events.
RDCP:PAG0000154
The MPS SuperHero Foundation supports individuals affected by MPS through financial assistance, emotional support, and educational resources.
The MSS Research Foundation supports families affected by Marshall-Smith Syndrome, providing resources, organizing events, and facilitating research to improve the lives of those impacted by this ultra-rare disease.
RDCP:PAG0000155
RDCP:PAG0000157
The MVA Society is dedicated to supporting individuals affected by Mosaic Variegated Aneuploidy (MVA) syndrome through funding research and building a community for patients and their families.
The organization focuses on supporting individuals affected by macular disease through research funding, providing information, and offering assistance to patients and their families.
This organization provides comprehensive information and resources related to various mental health conditions, including Alzheimer's Disease, PTSD, and Depression.
Make-A-Wish Connecticut grants wishes to children with critical illnesses, providing them with transformative experiences to improve their quality of life.
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