A urinary system disease characterized by structural malformations in the kidney and/or urinary tract containing vesicoureteral reflux.
Comprehensive, easy-to-understand information about this condition
How we create this content →The documentation surrounding congenital anomalies of the kidney and urinary tract is limited due to the rarity of the condition, which affects fewer individuals than many other diseases. This rarity hampers the ability to conduct large-scale clinical studies, and as a result, comprehensive clinical characterization is still ongoing.
To navigate your care effectively, consider consulting a pediatric nephrologist or a urologist with experience in congenital urinary tract anomalies. Genetic counseling may also be beneficial given the identified genes associated with the condition. While there are no specific patient organizations identified, resources such as GARD (rarediseases.info.nih.gov) can provide additional support and information. Additionally, inquire about participation in clinical trials to explore potential treatment options.
There are currently 11 active clinical trials investigating various aspects of congenital anomalies of the kidney and urinary tract. These trials may explore new treatment options or management strategies. For more information on these trials, you can visit ClinicalTrials.gov and search for the condition: https://clinicaltrials.gov/search?cond=congenital%20anomaly%20of%20kidney%20and%20urinary%20tract.
Actionable guidance for navigating care for congenital anomaly of kidney and urinary tract
To navigate your care effectively, consider consulting a pediatric nephrologist or a urologist with experience in congenital urinary tract anomalies. Genetic counseling may also be beneficial given the identified genes associated with the condition. While there are no specific patient organizations identified, resources such as GARD (rarediseases.info.nih.gov) can provide additional support and information. Additionally, inquire about participation in clinical trials to explore potential treatment options.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The documentation surrounding congenital anomalies of the kidney and urinary tract is limited due to the rarity of the condition, which affects fewer individuals than many other diseases. This rarity hampers the ability to conduct large-scale clinical studies, and as a result, comprehensive clinical characterization is still ongoing.
To navigate your care effectively, consider consulting a pediatric nephrologist or a urologist with experience in congenital urinary tract anomalies. Genetic counseling may also be beneficial given the identified genes associated with the condition. While there are no specific patient organizations identified, resources such as GARD (rarediseases.info.nih.gov) can provide additional support and information. Additionally, inquire about participation in clinical trials to explore potential treatment options.
There are currently 11 active clinical trials investigating various aspects of congenital anomalies of the kidney and urinary tract. These trials may explore new treatment options or management strategies. For more information on these trials, you can visit ClinicalTrials.gov and search for the condition: https://clinicaltrials.gov/search?cond=congenital%20anomaly%20of%20kidney%20and%20urinary%20tract.
Actionable guidance for navigating care for congenital anomaly of kidney and urinary tract
To navigate your care effectively, consider consulting a pediatric nephrologist or a urologist with experience in congenital urinary tract anomalies. Genetic counseling may also be beneficial given the identified genes associated with the condition. While there are no specific patient organizations identified, resources such as GARD (rarediseases.info.nih.gov) can provide additional support and information. Additionally, inquire about participation in clinical trials to explore potential treatment options.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The documentation surrounding congenital anomalies of the kidney and urinary tract is limited due to the rarity of the condition, which affects fewer individuals than many other diseases. This rarity hampers the ability to conduct large-scale clinical studies, and as a result, comprehensive clinical characterization is still ongoing.
To navigate your care effectively, consider consulting a pediatric nephrologist or a urologist with experience in congenital urinary tract anomalies. Genetic counseling may also be beneficial given the identified genes associated with the condition. While there are no specific patient organizations identified, resources such as GARD (rarediseases.info.nih.gov) can provide additional support and information. Additionally, inquire about participation in clinical trials to explore potential treatment options.
There are currently 11 active clinical trials investigating various aspects of congenital anomalies of the kidney and urinary tract. These trials may explore new treatment options or management strategies. For more information on these trials, you can visit ClinicalTrials.gov and search for the condition: https://clinicaltrials.gov/search?cond=congenital%20anomaly%20of%20kidney%20and%20urinary%20tract.
Actionable guidance for navigating care for congenital anomaly of kidney and urinary tract
To navigate your care effectively, consider consulting a pediatric nephrologist or a urologist with experience in congenital urinary tract anomalies. Genetic counseling may also be beneficial given the identified genes associated with the condition. While there are no specific patient organizations identified, resources such as GARD (rarediseases.info.nih.gov) can provide additional support and information. Additionally, inquire about participation in clinical trials to explore potential treatment options.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 31, 2026
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
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