A sarcoma that arises from the bone. Representative examples are osteosarcoma and chondrosarcoma.
Comprehensive, easy-to-understand information about this condition
How we create this content →The documentation surrounding bone sarcoma is limited due to its rarity, affecting fewer than 9 in 100,000 people. This rarity restricts the number of systematic clinical studies and comprehensive data collection, making it difficult to establish a complete clinical picture or to identify consistent phenotypes associated with the disease.
To navigate your care for bone sarcoma, seek out an oncologist who specializes in sarcomas, as they will have the expertise necessary for managing this rare cancer. Additionally, consider reaching out to genetic counselors who can provide insights into the implications of the CHEK2 and RB1 genes, especially if you have a family history of cancer. Resources like the National Cancer Institute (cancer.gov) can offer further guidance and support.
Currently, there are 245 active clinical trials investigating various aspects of bone sarcoma, including treatment options and disease management strategies. While there are no orphan drugs designated specifically for bone sarcoma, these trials offer hope for new therapies. You can explore these trials further at ClinicalTrials.gov using this link: https://clinicaltrials.gov/search?cond=bone%20sarcoma.
Actionable guidance for navigating care for bone sarcoma
To navigate your care for bone sarcoma, seek out an oncologist who specializes in sarcomas, as they will have the expertise necessary for managing this rare cancer. Additionally, consider reaching out to genetic counselors who can provide insights into the implications of the CHEK2 and RB1 genes, especially if you have a family history of cancer. Resources like the National Cancer Institute (cancer.gov) can offer further guidance and support.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 31, 2026
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.