An acute lymphoblastic leukemia occurring during adulthood.
Comprehensive, easy-to-understand information about this condition
How we create this content →The documentation surrounding adult acute lymphoblastic leukemia is limited due to its relative rarity compared to other leukemias, which affects fewer than 5,000 adults annually in the U.S. This rarity leads to fewer systematic clinical studies and a lack of comprehensive data on its clinical features and genetic underpinnings. Consequently, understanding and characterizing this condition remains a challenge for both patients and healthcare providers.
To navigate adult acute lymphoblastic leukemia, seek a hematologist or oncologist with expertise in leukemias, particularly those specializing in adult ALL. You may also consider participating in clinical trials, which can provide access to cutting-edge therapies. Resources such as the National Organization for Rare Disorders (NORD) at rarediseases.org can offer support and information. Additionally, inquire about any available patient registries or natural history studies that may provide further insights into your condition.
There are currently 259 active clinical trials focused on adult acute lymphoblastic leukemia, exploring various treatment options including novel therapies and combinations. Some of the orphan drugs designated for this condition include blinatumomab, CAR T-cell therapies targeting CD19 and CD22, and several investigational agents in development. For more information on ongoing trials, you can visit ClinicalTrials.gov at https://clinicaltrials.gov/search?cond=adult%20acute%20lymphoblastic%20leukemia.
Actionable guidance for navigating care for adult acute lymphoblastic leukemia
To navigate adult acute lymphoblastic leukemia, seek a hematologist or oncologist with expertise in leukemias, particularly those specializing in adult ALL. You may also consider participating in clinical trials, which can provide access to cutting-edge therapies. Resources such as the National Organization for Rare Disorders (NORD) at rarediseases.org can offer support and information. Additionally, inquire about any available patient registries or natural history studies that may provide further insights into your condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The documentation surrounding adult acute lymphoblastic leukemia is limited due to its relative rarity compared to other leukemias, which affects fewer than 5,000 adults annually in the U.S. This rarity leads to fewer systematic clinical studies and a lack of comprehensive data on its clinical features and genetic underpinnings. Consequently, understanding and characterizing this condition remains a challenge for both patients and healthcare providers.
To navigate adult acute lymphoblastic leukemia, seek a hematologist or oncologist with expertise in leukemias, particularly those specializing in adult ALL. You may also consider participating in clinical trials, which can provide access to cutting-edge therapies. Resources such as the National Organization for Rare Disorders (NORD) at rarediseases.org can offer support and information. Additionally, inquire about any available patient registries or natural history studies that may provide further insights into your condition.
There are currently 259 active clinical trials focused on adult acute lymphoblastic leukemia, exploring various treatment options including novel therapies and combinations. Some of the orphan drugs designated for this condition include blinatumomab, CAR T-cell therapies targeting CD19 and CD22, and several investigational agents in development. For more information on ongoing trials, you can visit ClinicalTrials.gov at https://clinicaltrials.gov/search?cond=adult%20acute%20lymphoblastic%20leukemia.
Actionable guidance for navigating care for adult acute lymphoblastic leukemia
To navigate adult acute lymphoblastic leukemia, seek a hematologist or oncologist with expertise in leukemias, particularly those specializing in adult ALL. You may also consider participating in clinical trials, which can provide access to cutting-edge therapies. Resources such as the National Organization for Rare Disorders (NORD) at rarediseases.org can offer support and information. Additionally, inquire about any available patient registries or natural history studies that may provide further insights into your condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The documentation surrounding adult acute lymphoblastic leukemia is limited due to its relative rarity compared to other leukemias, which affects fewer than 5,000 adults annually in the U.S. This rarity leads to fewer systematic clinical studies and a lack of comprehensive data on its clinical features and genetic underpinnings. Consequently, understanding and characterizing this condition remains a challenge for both patients and healthcare providers.
To navigate adult acute lymphoblastic leukemia, seek a hematologist or oncologist with expertise in leukemias, particularly those specializing in adult ALL. You may also consider participating in clinical trials, which can provide access to cutting-edge therapies. Resources such as the National Organization for Rare Disorders (NORD) at rarediseases.org can offer support and information. Additionally, inquire about any available patient registries or natural history studies that may provide further insights into your condition.
There are currently 259 active clinical trials focused on adult acute lymphoblastic leukemia, exploring various treatment options including novel therapies and combinations. Some of the orphan drugs designated for this condition include blinatumomab, CAR T-cell therapies targeting CD19 and CD22, and several investigational agents in development. For more information on ongoing trials, you can visit ClinicalTrials.gov at https://clinicaltrials.gov/search?cond=adult%20acute%20lymphoblastic%20leukemia.
Actionable guidance for navigating care for adult acute lymphoblastic leukemia
To navigate adult acute lymphoblastic leukemia, seek a hematologist or oncologist with expertise in leukemias, particularly those specializing in adult ALL. You may also consider participating in clinical trials, which can provide access to cutting-edge therapies. Resources such as the National Organization for Rare Disorders (NORD) at rarediseases.org can offer support and information. Additionally, inquire about any available patient registries or natural history studies that may provide further insights into your condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
Consider asking your healthcare providers these condition-specific questions
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Organizations with approved therapies for this disease
No approved therapies yet
Research is ongoing — 14 companies have orphan drug designations for this disease
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.