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amyloidosis - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

amyloidosis

MONDO:0019065

Also known as:amyloidamyloid diseaseamyloidoses

Find Clinical TrialsTrials

Overview

A disorder characterized by the localized or diffuse accumulation of amyloid protein in various anatomic sites. It may be primary, due to clonal plasma cell proliferations; secondary, due to long standing infections, chronic inflammatory disorders, or malignancies; or familial. It may affect the nerves, skin, tongue, joints, heart, liver, spleen, kidneys and adrenal glands.

Clinical Trials301 registered · 155 recruiting

Patient Orgs3 organizations · Amyloidosis Research Consortium, Inc. (ARC), Amyloidosis Foundation + 1 more

Diagnosis

Biomarker and diagnostic research for amyloidosis has been reported in the published literature.

Prognosis

Estimated prevalence: Unknown (Unknown prevalence).

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

301 clinical trials registered, 155 recruiting. Interventions under study include other interventions, drug therapy, biologic therapy, and procedural interventions. Pipeline includes 11 PHASE4, 31 PHASE3, 42 PHASE2. Research is sponsored by a mix of industry and academic institutions.

NCT ID	Title	Phase	Sponsor	Status
[NCT07079423](https://clinicaltrials.gov/study/NCT07079423)

Data assembled from 4 of 12 sources · Last updated Sep 19, 2026, 6:42 AM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Patient Support

Patient Advocacy Groups

View all PAGs →

Amyloidosis Research Consortium, Inc. (ARC)Primary Focus

USWebsite ↗

Amyloidosis FoundationPrimary Focus

USWebsite ↗

Amyloidosis Support GroupsPrimary Focus

USWebsite ↗

Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.

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Medical References

External Resources

Orphanet

European rare disease database

Orphanet:69

GARD

Genetic and Rare Diseases Info Center

GARD:18676

Questions for Your Care Team

→Are any of the 301 active clinical trials a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→How can I connect with Amyloidosis Research Consortium, Inc. (ARC) and other patient organizations for support?

← Back to All Diseases

Research Type	Count	% of Total
Research summaries	186	37%
Laboratory research	83	17%
Disease patterns and progression	73	15%
Patient case studies	51	10%
Clinical study results	50	10%
Testing and diagnosis research	48	10%
New treatment approaches	6	1%
Other research	3	1%

Kisho

amyloidosis

Overview

Diagnosis

Prognosis

Research Landscape

Patient Support

Patient Advocacy Groups

Medical References

External Resources

Orphanet

GARD

Questions for Your Care Team

Questions for Your Care Team

Recent Publications

Latest News & Developments

Transforming Amyloidosis Care: An Interview with Helen Lachmann - European Medical Journal

Cardiac screening of amyloid TTR pathogenic variant carriers: complementary value of echocardiographic global longitudinal strain imaging and bone scintigraphy.

Cystic fibrosis-associated amyloid a amyloidosis: a rare but devastating complication with poor prognosis.

Amyloidosis: Cardiac and Neurologic Involvement.

amyloidosis

Overview

Diagnosis

Prognosis

Research Landscape

Patient Support

Patient Advocacy Groups

Medical References

External Resources

Orphanet

GARD

Subtypes

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

Recent Publications

Latest News & Developments

Transforming Amyloidosis Care: An Interview with Helen Lachmann - European Medical Journal

Cardiac screening of amyloid TTR pathogenic variant carriers: complementary value of echocardiographic global longitudinal strain imaging and bone scintigraphy.

Cystic fibrosis-associated amyloid a amyloidosis: a rare but devastating complication with poor prognosis.

Amyloidosis: Cardiac and Neurologic Involvement.