Arachnoiditis (ARC) is a chronic inflammation of the arachnoid layer of the meninges, of which adhesive arachnoiditis is the most severe form, characterized by debilitating, intractable neurogenic bac...
Comprehensive, easy-to-understand information about this condition
How we create this content →Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 6, 2026
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 6, 2026
Documentation on arachnoiditis is limited due to its relatively rare occurrence, which restricts the scope of systematic clinical studies. Additionally, the complex nature of the condition, with overlapping symptoms with other neurological disorders, complicates accurate characterization. As the understanding of arachnoiditis evolves, there is hope for better insights and management options.
Patients with arachnoiditis frequently report a range of neurological symptoms. The most common features include tinnitus, hearing impairment, and paresthesia, all affecting 80-99% of individuals. Other notable symptoms include abnormalities of vision and the eye, sensory neuropathy, arthralgia, hyporeflexia, meningitis, and muscle weakness. These symptoms can significantly impact daily life and overall quality of life, highlighting the need for effective management strategies.
To navigate your care for arachnoiditis, consider consulting a neurologist with expertise in chronic pain management or neuroinflammatory conditions. Engaging with a pain management specialist may also be beneficial. While there are currently no identified patient organizations, resources such as the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can provide valuable information. Additionally, exploring clinical trial opportunities may offer access to new treatments and contribute to ongoing research.
Currently, there is one active clinical trial focusing on arachnoiditis. This trial may explore new treatment approaches or management strategies. For more details, you can search for ongoing studies at ClinicalTrials.gov using the following link: https://clinicaltrials.gov/search?cond=arachnoiditis. Participation in clinical trials can provide access to cutting-edge therapies and contribute to the broader understanding of this condition.
Actionable guidance for navigating care for arachnoiditis
To navigate your care for arachnoiditis, consider consulting a neurologist with expertise in chronic pain management or neuroinflammatory conditions. Engaging with a pain management specialist may also be beneficial. While there are currently no identified patient organizations, resources such as the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can provide valuable information. Additionally, exploring clinical trial opportunities may offer access to new treatments and contribute to ongoing research.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 6, 2026
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
AI-Generated Content: This summary was generated using AI. Always consult with qualified healthcare providers for medical guidance.
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