Behavioral variant of frontotemporal dementia (bv-FTD) is a form of frontotemporal dementia (FTD), characterized by progressive behavioral impairment and a decline in executive function with frontal l...
Comprehensive, easy-to-understand information about this condition
How we create this content →The documentation for bv-FTD is limited due to its relatively recent recognition as a distinct clinical entity, and because it affects a smaller population, comprehensive clinical studies are scarce. The variability in symptoms and progression also complicates the establishment of a standardized clinical profile.
To navigate your journey with bv-FTD, consider consulting a neurologist who specializes in frontotemporal dementia or neurodegenerative disorders. While there are no specific patient organizations identified for bv-FTD, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can provide valuable information. Additionally, inquire about participation in clinical trials, which may offer access to cutting-edge research and potential therapies.
Currently, there are 12 active clinical trials investigating various aspects of bv-FTD. These trials may explore potential therapeutic interventions or assess the natural history of the condition. For more information on these trials, you can visit ClinicalTrials.gov and search for 'behavioral variant of frontotemporal dementia'.
Actionable guidance for navigating care for behavioral variant of frontotemporal dementia
To navigate your journey with bv-FTD, consider consulting a neurologist who specializes in frontotemporal dementia or neurodegenerative disorders. While there are no specific patient organizations identified for bv-FTD, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can provide valuable information. Additionally, inquire about participation in clinical trials, which may offer access to cutting-edge research and potential therapies.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 31, 2026
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Organizations with approved therapies for this disease
No approved therapies yet
Research is ongoing — 1 company has orphan drug designations for this disease
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