bilateral renal agenesis dominant type - Symptoms, Causes & Research | Kisho | Kisho

bilateral renal agenesis dominant type

Rare Disease

MONDO:0022572

Genes

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Clinical Trials

1 active

Newborn Screening

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Patient Groups

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Patient-Friendly Information

Comprehensive, easy-to-understand information about this condition

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Last reviewed: Feb 2026

Evidence base: Early

Find Clinical TrialsTrials

Limited structured data is available for this condition. Information continues to be gathered as research progresses.(3 data sources · Data coverage: Limited)

Overview

Bilateral renal agenesis dominant type is an extremely rare condition. Because few cases have been documented, detailed clinical information is limited.

Symptoms & Signs

Currently, there are no known synonyms or associated genes for this condition. There is also no documented inheritance pattern or known symptoms. The status of orphan drug designations indicates that there are no compounds under investigation for this condition.

Prognosis & Outlook

Patients and caregivers are encouraged to seek genetic counseling to understand potential implications of inherited conditions. Connecting with rare disease registries such as NORD or Orphanet may provide additional resources and support. Engaging with online patient communities can also help in finding others with similar experiences.

Quick Resources

Helpful links for rare disease information and support

GARD (Genetic and Rare Diseases Information Center)NORD (National Organization for Rare Disorders)

General Questions to Consider

Questions that may be helpful when speaking with your healthcare team

•Are there specialists or centers of excellence with experience in this condition?
•Is there a patient registry I could participate in?
•What clinical trials might be available for this condition?
•Are there patient advocacy groups I should connect with?

Limited structured data is available for this condition. Information continues to be gathered as research progresses.(3 data sources · Data coverage: Limited)

Overview

Bilateral renal agenesis dominant type is an extremely rare condition. Because few cases have been documented, detailed clinical information is limited.

Symptoms & Signs

Prognosis & Outlook

Quick Resources

Helpful links for rare disease information and support

GARD (Genetic and Rare Diseases Information Center)NORD (National Organization for Rare Disorders)

General Questions to Consider

Questions that may be helpful when speaking with your healthcare team

•Are there specialists or centers of excellence with experience in this condition?
•Is there a patient registry I could participate in?
•What clinical trials might be available for this condition?
•Are there patient advocacy groups I should connect with?

Overview

Limited structured data is available for this condition. Information continues to be gathered as research progresses.(3 data sources · Data coverage: Limited)

Overview

Bilateral renal agenesis dominant type is an extremely rare condition. Because few cases have been documented, detailed clinical information is limited.

Symptoms & Signs

Prognosis & Outlook

Quick Resources

Helpful links for rare disease information and support

GARD (Genetic and Rare Diseases Information Center)NORD (National Organization for Rare Disorders)

General Questions to Consider

Questions that may be helpful when speaking with your healthcare team

•Are there specialists or centers of excellence with experience in this condition?
•Is there a patient registry I could participate in?
•What clinical trials might be available for this condition?
•Are there patient advocacy groups I should connect with?

Clinical

Limited Clinical Data

Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.

Treatment

Clinical Trials

Research studies investigating treatments and therapies for this condition.

Active Trials

Total Trials

Filter trials on ClinicalTrials.gov:

View Recruiting Trials View All Trials

Data from ClinicalTrials.gov Jan 7, 2026

Support

External Resources

GARD

Genetic and Rare Diseases Info Center

GARD:885

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AI-Generated Content: This summary was generated using AI. Always consult with qualified healthcare providers for medical guidance.

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