Bullous lichen planus is a variant of rare lichen planus characterized by the development of vesico-bullous lesions.
Comprehensive, easy-to-understand information about this condition
How we create this content →Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 7, 2026
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 7, 2026
Documentation on bullous lichen planus is limited due to its rarity, which affects fewer than a few thousand individuals globally. This scarcity leads to a lack of systematic clinical studies and comprehensive data collection. Additionally, the phenotypic overlap with other forms of lichen planus complicates characterization and understanding of the condition.
The primary clinical features of bullous lichen planus include abnormal blistering of the skin (80-99% prevalence), lichenification (80-99%), and pruritus (5-29%). Patients may also present with papules and, in some cases, breast aplasia. These symptoms can significantly affect the quality of life and require careful management.
To manage bullous lichen planus effectively, consider seeking a dermatologist with expertise in rare skin disorders. They can provide specialized care and treatment options tailored to your needs. Additionally, you may explore resources such as the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov for further information and support. While there are no specific patient organizations identified for this condition, engaging with broader rare disease communities can provide valuable connections and support.
Currently, there are no orphan drugs designated for bullous lichen planus. However, there is one active clinical trial that may offer insights into potential treatments and management strategies. You can find more information about this trial by visiting https://clinicaltrials.gov/search?cond=bullous%20lichen%20planus. Participation in clinical trials can be a valuable option for patients seeking new therapies.
Actionable guidance for navigating care for bullous lichen planus
To manage bullous lichen planus effectively, consider seeking a dermatologist with expertise in rare skin disorders. They can provide specialized care and treatment options tailored to your needs. Additionally, you may explore resources such as the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov for further information and support. While there are no specific patient organizations identified for this condition, engaging with broader rare disease communities can provide valuable connections and support.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 7, 2026
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
AI-Generated Content: This summary was generated using AI. Always consult with qualified healthcare providers for medical guidance.
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.