Folliculotropic mycosis fungoides is a rare variant of mycosis fungoides (MF), a form of cutaneous T-cell lymphoma, and is characterized by the presence of folliculotropic infiltrates in patch-plaque ...
Comprehensive, easy-to-understand information about this condition
How we create this content →The limited documentation surrounding folliculotropic mycosis fungoides is primarily due to its rarity, which affects fewer than 1 in 100,000 people. This rarity results in fewer systematic clinical studies and a lack of comprehensive data on its clinical features and management. Additionally, the overlap with other forms of mycosis fungoides complicates the characterization of this variant.
To navigate your care effectively, seek a dermatologist with expertise in cutaneous T-cell lymphomas, specifically those familiar with mycosis fungoides variants. While there are currently no patient organizations specific to folliculotropic mycosis fungoides, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can provide valuable information. Additionally, consider participating in clinical trials, which may offer access to new therapies and contribute to the understanding of this condition.
There are currently two active clinical trials investigating treatments for folliculotropic mycosis fungoides. Among the orphan drugs designated for this condition are human anti-CD4 monoclonal antibody, MRG-106 oligonucleotide inhibitor of microRNA miR-155-5p, and Methotrexate with laurocapram. For more information about ongoing trials, you can visit ClinicalTrials.gov at https://clinicaltrials.gov/search?cond=folliculotropic%20mycosis%20fungoides.
Actionable guidance for navigating care for folliculotropic mycosis fungoides
To navigate your care effectively, seek a dermatologist with expertise in cutaneous T-cell lymphomas, specifically those familiar with mycosis fungoides variants. While there are currently no patient organizations specific to folliculotropic mycosis fungoides, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can provide valuable information. Additionally, consider participating in clinical trials, which may offer access to new therapies and contribute to the understanding of this condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The limited documentation surrounding folliculotropic mycosis fungoides is primarily due to its rarity, which affects fewer than 1 in 100,000 people. This rarity results in fewer systematic clinical studies and a lack of comprehensive data on its clinical features and management. Additionally, the overlap with other forms of mycosis fungoides complicates the characterization of this variant.
To navigate your care effectively, seek a dermatologist with expertise in cutaneous T-cell lymphomas, specifically those familiar with mycosis fungoides variants. While there are currently no patient organizations specific to folliculotropic mycosis fungoides, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can provide valuable information. Additionally, consider participating in clinical trials, which may offer access to new therapies and contribute to the understanding of this condition.
There are currently two active clinical trials investigating treatments for folliculotropic mycosis fungoides. Among the orphan drugs designated for this condition are human anti-CD4 monoclonal antibody, MRG-106 oligonucleotide inhibitor of microRNA miR-155-5p, and Methotrexate with laurocapram. For more information about ongoing trials, you can visit ClinicalTrials.gov at https://clinicaltrials.gov/search?cond=folliculotropic%20mycosis%20fungoides.
Actionable guidance for navigating care for folliculotropic mycosis fungoides
To navigate your care effectively, seek a dermatologist with expertise in cutaneous T-cell lymphomas, specifically those familiar with mycosis fungoides variants. While there are currently no patient organizations specific to folliculotropic mycosis fungoides, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can provide valuable information. Additionally, consider participating in clinical trials, which may offer access to new therapies and contribute to the understanding of this condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The limited documentation surrounding folliculotropic mycosis fungoides is primarily due to its rarity, which affects fewer than 1 in 100,000 people. This rarity results in fewer systematic clinical studies and a lack of comprehensive data on its clinical features and management. Additionally, the overlap with other forms of mycosis fungoides complicates the characterization of this variant.
To navigate your care effectively, seek a dermatologist with expertise in cutaneous T-cell lymphomas, specifically those familiar with mycosis fungoides variants. While there are currently no patient organizations specific to folliculotropic mycosis fungoides, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can provide valuable information. Additionally, consider participating in clinical trials, which may offer access to new therapies and contribute to the understanding of this condition.
There are currently two active clinical trials investigating treatments for folliculotropic mycosis fungoides. Among the orphan drugs designated for this condition are human anti-CD4 monoclonal antibody, MRG-106 oligonucleotide inhibitor of microRNA miR-155-5p, and Methotrexate with laurocapram. For more information about ongoing trials, you can visit ClinicalTrials.gov at https://clinicaltrials.gov/search?cond=folliculotropic%20mycosis%20fungoides.
Actionable guidance for navigating care for folliculotropic mycosis fungoides
To navigate your care effectively, seek a dermatologist with expertise in cutaneous T-cell lymphomas, specifically those familiar with mycosis fungoides variants. While there are currently no patient organizations specific to folliculotropic mycosis fungoides, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can provide valuable information. Additionally, consider participating in clinical trials, which may offer access to new therapies and contribute to the understanding of this condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Organizations with approved therapies for this disease
No approved therapies yet
Research is ongoing — 7 companies have orphan drug designations for this disease
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