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frontal fibrosing alopecia (FFA) - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

frontal fibrosing alopecia

MONDO:0016776

Also known as:FFA

Find Clinical TrialsTrials

Overview

Frontal fibrosing alopecia (FFA) is a rare variant of lichen planopilaris characterized by symmetrical, progressive, band-like anterior hair loss of the scalp.

Clinical Trials4 registered · 2 recruiting

Diagnosis

Biomarker and diagnostic research for frontal fibrosing alopecia has been reported in the published literature.

Prognosis

Estimated prevalence: Unknown (Unknown prevalence).

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

4 clinical trials registered, 2 recruiting. Interventions under study include drug therapy and medical devices. Pipeline includes 1 PHASE4, 1 PHASE2, 1 NA. Research is primarily sponsored by academic and government institutions.

176 publications have been identified in PubMed for frontal fibrosing alopecia. Research spans Other (29%), Review / Meta-Analysis (24%), and Epidemiology / Natural History (19%).

Research Type	Count	% of Total
Other research	50

Data assembled from 4 of 12 sources · Last updated Sep 19, 2026, 9:41 PM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Medical References

External Resources

Orphanet

European rare disease database

Orphanet:254492

GARD

Genetic and Rare Diseases Info Center

GARD:10886

Questions for Your Care Team

→Are any of the 4 active clinical trials a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→Is there a patient registry I should consider joining?

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frontal fibrosing alopecia

Overview

Diagnosis

Prognosis

Research Landscape

Medical References

External Resources

Orphanet

GARD

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

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