Neoplasms of the hematopoietic system, including hematopoietic cell neoplasms (e.g. leukemias, lymphomas) and non-hematopoietic cell neoplasms that can affect the hematopoietic system (e.g. lymph node...
Comprehensive, easy-to-understand information about this condition
How we create this content →Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.
Consider asking your healthcare providers these condition-specific questions
Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.
Consider asking your healthcare providers these condition-specific questions
The documentation surrounding hematopoietic and lymphoid system neoplasms is limited due to the complexity and variability of these conditions. They affect a relatively small population, which makes systematic clinical studies challenging. Additionally, the genetic basis of these neoplasms is still being explored, and the clinical characterization is ongoing, leading to gaps in comprehensive data.
To navigate your care effectively, consider consulting with a hematologist or an oncologist who specializes in blood cancers, particularly those experienced in treating hematopoietic neoplasms. Resources such as the Be the Match Registry and Leukaemia CARE can provide support and information. Additionally, participating in patient registries or natural history studies may be beneficial for gathering more data on your condition. Genetic counseling may also be a valuable step, especially given the known involvement of the STAT3 gene.
Currently, there are 164 active clinical trials focusing on hematopoietic and lymphoid system neoplasms. These trials explore various treatment approaches and may offer opportunities for patients to participate in cutting-edge research. For more information on specific trials, you can visit ClinicalTrials.gov and search for 'hematopoietic and lymphoid system neoplasm'. This research landscape provides hope for advancements in treatment and understanding of these conditions.
Actionable guidance for navigating care for hematopoietic and lymphoid system neoplasm
To navigate your care effectively, consider consulting with a hematologist or an oncologist who specializes in blood cancers, particularly those experienced in treating hematopoietic neoplasms. Resources such as the Be the Match Registry and Leukaemia CARE can provide support and information. Additionally, participating in patient registries or natural history studies may be beneficial for gathering more data on your condition. Genetic counseling may also be a valuable step, especially given the known involvement of the STAT3 gene.
Consider asking your healthcare providers these condition-specific questions
Connect with organizations supporting the hematopoietic and lymphoid system neoplasm community
Helpful links for rare disease information and support
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Feb 8, 2026
Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.
Consider asking your healthcare providers these condition-specific questions
2 peer-reviewed sources from PubMed
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Organizations with approved therapies for this disease
No approved therapies yet
Research is ongoing — 4 companies have orphan drug designations for this disease
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.