Kisho is an information platform, not a medical provider. Nothing on this site constitutes medical advice, diagnosis, or treatment recommendations. All content is aggregated from publicly available sources (including ClinicalTrials.gov, PubMed, FDA.gov, and Orphanet) and is provided for informational purposes only. Clinical trial eligibility, treatment decisions, and any health-related actions should always be discussed with a qualified healthcare professional. Kisho does not endorse any specific therapy, organization, or clinical trial. Terms of use · Privacy policy
A generalized lymphatic anomaly characterized by kaposiform spindled lymphatic endothelial cells.
Estimated prevalence: Unknown (Unknown prevalence).
2 clinical trials registered, 1 recruiting. Interventions under study include other interventions. Research is primarily sponsored by academic and government institutions.
27 publications have been identified in PubMed for kaposiform lymphangiomatosis. Research spans Case Report / Case Series (41%), Basic Science / Preclinical (26%), and Review / Meta-Analysis (19%).
Research Type | Count | % of Total |
|---|---|---|
Patient case studies | 11 | 41% |
Data assembled from 4 of 12 sources · Last updated Sep 19, 2026, 2:58 PM UTC
Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.
European rare disease database
Genetic and Rare Diseases Info Center
Laboratory research |
7 |
26% |
Research summaries | 5 | 19% |
Clinical study results | 2 | 7% |
Disease patterns and progression | 1 | 4% |
New treatment approaches | 1 | 4% |
Swaminathan VV (2026). [PMID: 42033477](https://pubmed.ncbi.nlm.nih.gov/42033477/). *Eur J Pediatr*. [Case Report / Case Series]
Yang C (2026). [PMID: 41625680](https://pubmed.ncbi.nlm.nih.gov/41625680/). *O G Open*. [Case Report / Case Series]
Bilny-Paluch M (2026). [PMID: 42110416](https://pubmed.ncbi.nlm.nih.gov/42110416/). *Front Med (Lausanne)*. [Review / Meta-Analysis]
Alharbi S (2026). [PMID: 41496696](https://pubmed.ncbi.nlm.nih.gov/41496696/). *Pediatr Blood Cancer*. [Basic Science / Preclinical]
Pratt M (2026). [PMID: 41349185](https://pubmed.ncbi.nlm.nih.gov/41349185/). *Semin Roentgenol*. [Review / Meta-Analysis]
Xu Y (2026). [PMID: 41116710](https://pubmed.ncbi.nlm.nih.gov/41116710/). *Pediatr Blood Cancer*. [Clinical Trial Publication]
McDaniel CG (2026). [PMID: 41992710](https://pubmed.ncbi.nlm.nih.gov/41992710/). *Pediatr Blood Cancer*. [Basic Science / Preclinical]
Han W (2025). [PMID: 40382592](https://pubmed.ncbi.nlm.nih.gov/40382592/). *BMC Pulm Med*. [Epidemiology / Natural History]
Covil E (2025). [PMID: 39842283](https://pubmed.ncbi.nlm.nih.gov/39842283/). *Int J Surg Case Rep*. [Case Report / Case Series]
Wong Grossman AV (2025). [PMID: 41244261](https://pubmed.ncbi.nlm.nih.gov/41244261/). *Front Pediatr*. [Case Report / Case Series]
AI-curated news mentioning kaposiform lymphangiomatosis
Updated May 3, 2026
A recent publication discusses a case of giant mesenteric lymphangioma in a young adult, highlighting its rarity and clinical implications. This case contributes to the understanding of lymphangiomas and their presentation in adults.