Kisho

Kisho is an information platform, not a medical provider. Nothing on this site constitutes medical advice, diagnosis, or treatment recommendations. All content is aggregated from publicly available sources (including ClinicalTrials.gov, PubMed, FDA.gov, and Orphanet) and is provided for informational purposes only. Clinical trial eligibility, treatment decisions, and any health-related actions should always be discussed with a qualified healthcare professional. Kisho does not endorse any specific therapy, organization, or clinical trial. Terms of use · Privacy policy

medulloblastoma with extensive nodularity (MBEN) - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

medulloblastoma with extensive nodularity

MONDO:0016710

Also known as:MBENcerebellar neuroblastomamedulloblastoma with extensive nodularity and advanced neuronal differentiation

Overview

Medulloblastoma with extensive nodularity (MBEN) is a histological variant of medulloblastoma, an embryonic malignancy, most often located in the inferior medullary velum and then growing into the fourth ventricle, and presenting in infants and young children with symptoms of increased intracranial pressure such as headache, listlessness, vomiting, diplopia and papilledema. It is often associated with Gorlin syndrome and has a relatively good prognosis.

ResearchLimited published research (9 articles)

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

No clinical trials have been registered for medulloblastoma with extensive nodularity.

9 publications have been identified in PubMed for medulloblastoma with extensive nodularity. Research spans Case Report / Case Series (56%), Epidemiology / Natural History (22%), and Other (11%).

Recent Publications

Cigdem Karatayli E (2026). [PMID: 41710837](https://pubmed.ncbi.nlm.nih.gov/41710837/). *Cureus*. [Case Report / Case Series]
Yavuz M (2026). [PMID: 41952953](https://pubmed.ncbi.nlm.nih.gov/41952953/). *Brain Spine*. [Case Report / Case Series]
Ozono I (2025). [PMID: 41216086](https://pubmed.ncbi.nlm.nih.gov/41216086/). *Cureus*. [Case Report / Case Series]
Zhang J (2025). [PMID: 40575173](https://pubmed.ncbi.nlm.nih.gov/40575173/). *Front Oncol*. [Epidemiology / Natural History]
Zhang J (2025). [PMID: 40303994](https://pubmed.ncbi.nlm.nih.gov/40303994/). *Front Oncol*. [Epidemiology / Natural History]

Data assembled from 3 of 12 sources · Last updated Sep 20, 2026, 11:12 AM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Medical References

External Resources

Orphanet

European rare disease database

Orphanet:251858

GARD

Genetic and Rare Diseases Info Center

GARD:17214

Questions for Your Care Team

→Are there specialists or centers of excellence for this condition in my area?
→Is there a patient registry I should consider joining?

← Back to All Diseases

medulloblastoma with extensive nodularity

Overview

Research Landscape

Recent Publications

Medical References

External Resources

Orphanet

GARD

Related Diseases

Questions for Your Care Team

Questions for Your Care Team