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moderately severe hemophilia B - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

moderately severe hemophilia B

MONDO:0015716

Also known as:moderately severe factor IX deficiencymoderately severe haemophilia type Bmoderately severe hemophilia type B

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Overview

Moderately severe hemophilia B is a form of hemophilia B characterized by factor IX deficiency leading to abnormal bleeding as a result of minor injuries, or following surgery or tooth extraction.

Clinical Trials2 registered · 2 recruiting

Prognosis

Estimated prevalence: 1-9 in 1,000,000 (Rare).

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

2 clinical trials registered, 2 recruiting. Interventions under study include gene therapy. Pipeline includes 2 PHASE3. Research is primarily industry-sponsored.

28 publications have been identified in PubMed for moderately severe hemophilia B. Research spans Epidemiology / Natural History (43%), Clinical Trial Publication (29%), and Other (7%).

Research Type	Count	% of Total
Disease patterns and progression	12	43%

Data assembled from 4 of 12 sources · Last updated Sep 18, 2026, 2:49 PM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Patient Support

Financial & Access Support (External Programs)

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Hemophilia Program

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Medical References

External Resources

Orphanet

European rare disease database

Orphanet:169796

GARD

Genetic and Rare Diseases Info Center

GARD:17057

Questions for Your Care Team

→Are any of the 2 active clinical trials a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→Is there a patient registry I should consider joining?

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moderately severe hemophilia B

Overview

Prognosis

Research Landscape

Patient Support

Financial & Access Support (External Programs)

Are you a patient organization for this condition?

Medical References

External Resources

Orphanet

GARD

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

Recent Publications