A sleep disorder characterized by a tendency for excessive sleepiness during the day which occurs even after adequate sleep in the nighttime. The persons who suffer from this condition experience fati...
Comprehensive, easy-to-understand information about this condition
How we create this content →Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
The limited documentation surrounding narcolepsy is largely due to its complex nature and the fact that it affects a relatively small population. Systematic clinical studies have been constrained by the rarity of the condition and the overlapping symptoms with other sleep disorders. As research continues to evolve, more comprehensive data may emerge, providing better insights into this condition.
To navigate your journey with narcolepsy, consider consulting a sleep specialist who has experience with sleep disorders, particularly narcolepsy. Resources such as the Narcolepsy Network (https://narcolepsynetwork.org) and Wake Up Narcolepsy, Inc. (https://wakeupnarcolepsy.org) can provide valuable support and information. Additionally, participating in clinical trials may offer access to cutting-edge treatments and contribute to the understanding of narcolepsy. Keep an eye out for any patient registries or natural history studies that may be available.
There are currently 36 active clinical trials investigating various aspects of narcolepsy. These trials aim to explore potential treatments and management strategies for the condition. For more information, you can search the ClinicalTrials.gov database at https://clinicaltrials.gov/search?cond=narcolepsy. While no orphan drugs have been designated, the ongoing research may lead to new therapeutic options in the future.
Actionable guidance for navigating care for narcolepsy
To navigate your journey with narcolepsy, consider consulting a sleep specialist who has experience with sleep disorders, particularly narcolepsy. Resources such as the Narcolepsy Network (https://narcolepsynetwork.org) and Wake Up Narcolepsy, Inc. (https://wakeupnarcolepsy.org) can provide valuable support and information. Additionally, participating in clinical trials may offer access to cutting-edge treatments and contribute to the understanding of narcolepsy. Keep an eye out for any patient registries or natural history studies that may be available.
Consider asking your healthcare providers these condition-specific questions
Connect with organizations supporting the narcolepsy community
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Feb 10, 2026
Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
1 peer-reviewed source from PubMed
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Organizations with approved therapies for this disease
No approved therapies yet
Research is ongoing — 13 companies have orphan drug designations for this disease
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.