A condition beginning in the first day of life that results from inadequate surfactant production, causing increased work of breathing and impaired gas exchange.
Comprehensive, easy-to-understand information about this condition
How we create this content →The documentation surrounding newborn respiratory distress syndrome is limited primarily due to its occurrence in a relatively small population of newborns, particularly those who are premature. This rarity can hinder systematic clinical studies and comprehensive data collection. Additionally, the condition's clinical features may vary widely, making it challenging to establish a standardized characterization.
To navigate newborn respiratory distress syndrome effectively, consider consulting a pediatric pulmonologist who specializes in neonatal respiratory conditions. You may also explore opportunities to participate in clinical trials, which can provide access to cutting-edge treatments. For more resources, visit the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov. While there are no specific patient organizations identified for this condition, staying connected with healthcare providers and research networks can be beneficial.
There are several orphan drugs designated for the treatment of newborn respiratory distress syndrome, including Dipalmitoylphosphatidylcholine/phosphatidylglycerol, Lucinactant, and perfluorooctyl-bromide (PFOB). Currently, there are 346 active clinical trials exploring various aspects of this condition. For more information on these trials, you can visit ClinicalTrials.gov and search for 'newborn respiratory distress syndrome'.
Actionable guidance for navigating care for newborn respiratory distress syndrome
To navigate newborn respiratory distress syndrome effectively, consider consulting a pediatric pulmonologist who specializes in neonatal respiratory conditions. You may also explore opportunities to participate in clinical trials, which can provide access to cutting-edge treatments. For more resources, visit the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov. While there are no specific patient organizations identified for this condition, staying connected with healthcare providers and research networks can be beneficial.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The documentation surrounding newborn respiratory distress syndrome is limited primarily due to its occurrence in a relatively small population of newborns, particularly those who are premature. This rarity can hinder systematic clinical studies and comprehensive data collection. Additionally, the condition's clinical features may vary widely, making it challenging to establish a standardized characterization.
To navigate newborn respiratory distress syndrome effectively, consider consulting a pediatric pulmonologist who specializes in neonatal respiratory conditions. You may also explore opportunities to participate in clinical trials, which can provide access to cutting-edge treatments. For more resources, visit the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov. While there are no specific patient organizations identified for this condition, staying connected with healthcare providers and research networks can be beneficial.
There are several orphan drugs designated for the treatment of newborn respiratory distress syndrome, including Dipalmitoylphosphatidylcholine/phosphatidylglycerol, Lucinactant, and perfluorooctyl-bromide (PFOB). Currently, there are 346 active clinical trials exploring various aspects of this condition. For more information on these trials, you can visit ClinicalTrials.gov and search for 'newborn respiratory distress syndrome'.
Actionable guidance for navigating care for newborn respiratory distress syndrome
To navigate newborn respiratory distress syndrome effectively, consider consulting a pediatric pulmonologist who specializes in neonatal respiratory conditions. You may also explore opportunities to participate in clinical trials, which can provide access to cutting-edge treatments. For more resources, visit the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov. While there are no specific patient organizations identified for this condition, staying connected with healthcare providers and research networks can be beneficial.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The documentation surrounding newborn respiratory distress syndrome is limited primarily due to its occurrence in a relatively small population of newborns, particularly those who are premature. This rarity can hinder systematic clinical studies and comprehensive data collection. Additionally, the condition's clinical features may vary widely, making it challenging to establish a standardized characterization.
To navigate newborn respiratory distress syndrome effectively, consider consulting a pediatric pulmonologist who specializes in neonatal respiratory conditions. You may also explore opportunities to participate in clinical trials, which can provide access to cutting-edge treatments. For more resources, visit the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov. While there are no specific patient organizations identified for this condition, staying connected with healthcare providers and research networks can be beneficial.
There are several orphan drugs designated for the treatment of newborn respiratory distress syndrome, including Dipalmitoylphosphatidylcholine/phosphatidylglycerol, Lucinactant, and perfluorooctyl-bromide (PFOB). Currently, there are 346 active clinical trials exploring various aspects of this condition. For more information on these trials, you can visit ClinicalTrials.gov and search for 'newborn respiratory distress syndrome'.
Actionable guidance for navigating care for newborn respiratory distress syndrome
To navigate newborn respiratory distress syndrome effectively, consider consulting a pediatric pulmonologist who specializes in neonatal respiratory conditions. You may also explore opportunities to participate in clinical trials, which can provide access to cutting-edge treatments. For more resources, visit the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov. While there are no specific patient organizations identified for this condition, staying connected with healthcare providers and research networks can be beneficial.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
Consider asking your healthcare providers these condition-specific questions
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Organizations with approved therapies for this disease
No approved therapies yet
Research is ongoing — 13 companies have orphan drug designations for this disease
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.