A melanoma that arises from the structures of the eye or ocular adnexa.
Comprehensive, easy-to-understand information about this condition
How we create this content →Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.
Consider asking your healthcare providers these condition-specific questions
Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.
Consider asking your healthcare providers these condition-specific questions
The documentation for ocular melanoma is limited primarily because it is a rare condition, affecting fewer individuals than more common cancers. This rarity restricts the ability to conduct large-scale clinical studies, resulting in gaps in our understanding of its genetic basis and clinical features. Additionally, the complexity of ocular anatomy and the potential overlap with other eye conditions further complicate systematic documentation.
To navigate your care for ocular melanoma, consider seeking a specialist in ocular oncology who has experience with melanoma of the eye. You can also connect with patient organizations such as the Ocular Melanoma Foundation (OMF) at https://ocularmelanoma.org and A Cure in Sight at https://acureinsight.org for support and resources. Participating in clinical trials can also be a valuable option; explore the available studies at ClinicalTrials.gov. If you have concerns about genetic factors, consider reaching out to a genetic counselor for personalized guidance.
There is ongoing research into ocular melanoma, with one orphan drug designated for development: rose bengal disodium. Furthermore, there are currently 89 active clinical trials exploring various aspects of this condition. You can find more information about these trials at ClinicalTrials.gov by searching for ocular melanoma. This research provides hope for better understanding and potential treatment options in the future.
Actionable guidance for navigating care for ocular melanoma
To navigate your care for ocular melanoma, consider seeking a specialist in ocular oncology who has experience with melanoma of the eye. You can also connect with patient organizations such as the Ocular Melanoma Foundation (OMF) at https://ocularmelanoma.org and A Cure in Sight at https://acureinsight.org for support and resources. Participating in clinical trials can also be a valuable option; explore the available studies at ClinicalTrials.gov. If you have concerns about genetic factors, consider reaching out to a genetic counselor for personalized guidance.
Consider asking your healthcare providers these condition-specific questions
Connect with organizations supporting the ocular melanoma community
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Feb 10, 2026
Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.
Consider asking your healthcare providers these condition-specific questions
1 peer-reviewed source from PubMed
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Organizations with approved therapies for this disease
No approved therapies yet
Research is ongoing — 6 companies have orphan drug designations for this disease
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.