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papillary tumor of the pineal region (PTPR) - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

papillary tumor of the pineal region

MONDO:0016724

Also known as:PTPR

Overview

Papillary tumor of the pineal region (PTPR) is a very rare neoplasm of the pineal region that is thought to arise from the specialized ependymocytes of the subcommissural organ and that manifests with visual disturbances, headaches, loss of coordination and balance, nausea and vomiting due to obstructive hydrocephalus.

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

No clinical trials have been registered for papillary tumor of the pineal region.

17 publications have been identified in PubMed for papillary tumor of the pineal region. Research spans Review / Meta-Analysis (47%), Case Report / Case Series (35%), and Clinical Trial Publication (6%).

Research Type	Count	% of Total
Research summaries	8	47%
Patient case studies	6

Data assembled from 3 of 12 sources · Last updated Sep 20, 2026, 7:40 PM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Medical References

External Resources

Orphanet

European rare disease database

Orphanet:251915

GARD

Genetic and Rare Diseases Info Center

GARD:20725

Questions for Your Care Team

→Are there specialists or centers of excellence for this condition in my area?
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papillary tumor of the pineal region

Overview

Research Landscape

Medical References

External Resources

Orphanet

GARD

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

Recent Publications