Kisho

Kisho is an information platform, not a medical provider. Nothing on this site constitutes medical advice, diagnosis, or treatment recommendations. All content is aggregated from publicly available sources (including ClinicalTrials.gov, PubMed, FDA.gov, and Orphanet) and is provided for informational purposes only. Clinical trial eligibility, treatment decisions, and any health-related actions should always be discussed with a qualified healthcare professional. Kisho does not endorse any specific therapy, organization, or clinical trial. Terms of use · Privacy policy

paraganglioma - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

paraganglioma

MONDO:0000448

Also known as:Paraganglionic neoplasmParaganglionic tumorParaganglionic tumour

Find Clinical TrialsTrials

Overview

A benign or malignant neoplasm arising from paraganglia located along the sympathetic or parasympathetic nerves. Infrequently, it may arise outside the usual distribution of the sympathetic and parasympathetic paraganglia. Tumors arising from the adrenal gland medulla are called pheochromocytomas. Morphologically, paragangliomas usually display a nesting (Zellballen) growth pattern. There are no reliable morphologic criteria to distinguish between benign and malignant paragangliomas. The only definitive indicator of malignancy is the presence of regional or distant metastases.

OnsetADULT

Clinical Trials49 registered · 25 recruiting

Patient Orgs1 organizations · Pheo Para Alliance

Diagnosis

Biomarker and diagnostic research for paraganglioma has been reported in the published literature.

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

49 clinical trials registered, 25 recruiting. Interventions under study include drug therapy, other interventions, procedural interventions, and biologic therapy. Pipeline includes 2 PHASE4, 18 PHASE2, 6 PHASE1. Research is sponsored by a mix of industry and academic institutions.

NCT ID	Title	Phase	Sponsor	Status
[NCT04119024](https://clinicaltrials.gov/study/NCT04119024)

Data assembled from 3 of 12 sources · Last updated Oct 3, 2026, 5:08 PM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Patient Support

Patient Advocacy Groups

View all PAGs →

Pheo Para Alliance

USWebsite ↗

Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.

Are you a patient organization not listed here? Claim this page to be listed and embed this content on your site — free.

Medical References

Questions for Your Care Team

→Are any of the 49 active clinical trials a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→How can I connect with Pheo Para Alliance and other patient organizations for support?

← Back to All Diseases

Research Type	Count	% of Total
Patient case studies	144	29%
Research summaries	115	23%
Disease patterns and progression	69	14%
Laboratory research	59	12%
Testing and diagnosis research	50	10%
Clinical study results	48	10%
New treatment approaches	8	2%
Other research	7	1%

Kisho

paraganglioma

Overview

Diagnosis

Research Landscape

Patient Support

Patient Advocacy Groups

Medical References

Questions for Your Care Team

Questions for Your Care Team

Recent Publications

Latest News & Developments

A case of cardiac paraganglioma in a patient with SDHC-related hereditary paraganglioma pheochromocytoma syndrome.

Belzutifan, A Hypoxia-Inducible Factor 2-Alpha Inhibitor, for Patients with Advanced Pheochromocytoma and Paraganglioma.

Imaging Findings of an Exophytic Urinary Bladder Paraganglioma Mimicking a Gynecological Mass: A Case Report.

paraganglioma

Overview

Diagnosis

Research Landscape

Patient Support

Patient Advocacy Groups

Medical References

Subtypes

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

Recent Publications

Latest News & Developments

A case of cardiac paraganglioma in a patient with SDHC-related hereditary paraganglioma pheochromocytoma syndrome.

Belzutifan, A Hypoxia-Inducible Factor 2-Alpha Inhibitor, for Patients with Advanced Pheochromocytoma and Paraganglioma.

Imaging Findings of an Exophytic Urinary Bladder Paraganglioma Mimicking a Gynecological Mass: A Case Report.