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perineural cyst - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

perineural cyst

MONDO:0019000

Also known as:Tarlov cystTarlov cystsperineural cysts

Find Clinical TrialsTrials

Overview

Perineural (or Tarlov) cysts are cerebrospinal fluid-filled nerve root cysts most commonly found at the sacral level of the spine, although they can be found in any section of the spine, which can cause progressively painful radiculopathy.

Clinical Trials1 registered

Patient Orgs1 organizations · Tarlov Cyst Disease Foundation

Diagnosis

Biomarker and diagnostic research for perineural cyst has been reported in the published literature.

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

1 clinical trial registered. Interventions under study include procedural interventions. Research is primarily sponsored by academic and government institutions.

62 publications have been identified in PubMed for perineural cyst. Research spans Case Report / Case Series (48%), Review / Meta-Analysis (16%), and Diagnostic / Biomarker (10%).

Research Type	Count	% of Total
Patient case studies	30	48%

Data assembled from 4 of 12 sources · Last updated Oct 8, 2026, 6:05 AM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Patient Support

Patient Advocacy Groups

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Tarlov Cyst Disease FoundationPrimary Focus

USWebsite ↗

Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.

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Medical References

External Resources

Orphanet

European rare disease database

Orphanet:65250

GARD

Genetic and Rare Diseases Info Center

GARD:9258

Questions for Your Care Team

→Are any of the 1 active clinical trial a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→How can I connect with Tarlov Cyst Disease Foundation and other patient organizations for support?

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perineural cyst

Overview

Diagnosis

Research Landscape

Patient Support

Patient Advocacy Groups

Medical References

External Resources

Orphanet

GARD

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

Recent Publications