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pineoblastoma - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

pineoblastoma

MONDO:0016722

Also known as:PNET of pineal glandPNET of the pineal glandpineal PNET

Find Clinical TrialsTrials

Overview

Pineoblastoma is a rare, malignant type of supratentorial primitive neuroectodermal tumor (sPNET), found mainly in children (less than 10% of cases are reported in adults), and located in the pineal region of the brain but that can metastasize along the neuroaxis. As it is the most aggressive of the pineal parenchymal tumors, it is usually associated with a poor prognosis.

Clinical Trials8 registered · 6 recruiting

Diagnosis

Biomarker and diagnostic research for pineoblastoma has been reported in the published literature.

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

8 clinical trials registered, 6 recruiting. Interventions under study include drug therapy, biologic therapy, procedural interventions, and other interventions. Pipeline includes 5 PHASE1, 2 EARLY_PHASE1. Research is primarily sponsored by academic and government institutions.

NCT ID	Title	Phase	Sponsor	Status
[NCT04185038](https://clinicaltrials.gov/study/NCT04185038)

Data assembled from 4 of 12 sources · Last updated Sep 19, 2026, 6:42 AM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Medical References

External Resources

Orphanet

European rare disease database

Orphanet:251909

GARD

Genetic and Rare Diseases Info Center

GARD:9369

Questions for Your Care Team

→Are any of the 8 active clinical trials a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→Is there a patient registry I should consider joining?

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Research Type	Count	% of Total
Research summaries	27	23%
Patient case studies	27	23%
Clinical study results	23	19%
Laboratory research	23	19%
Disease patterns and progression	9	8%
Testing and diagnosis research	4	3%
New treatment approaches	4	3%
Other research	1	1%

pineoblastoma

Overview

Diagnosis

Research Landscape

Medical References

External Resources

Orphanet

GARD

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

Recent Publications