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primary interstitial lung disease specific to childhood - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

primary interstitial lung disease specific to childhood

MONDO:0017015

Also known as:primary ILD specific to childhoodcHILDchildren's interstitial lung disease

Find Clinical TrialsTrials

Overview

OnsetCONGENITAL, NEONATAL

Clinical Trials843 registered · 235 recruiting

Diagnosis

Biomarker and diagnostic research for primary interstitial lung disease specific to childhood has been reported in the published literature.

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

843 clinical trials registered, 235 recruiting. Interventions under study include other interventions, drug therapy, medical devices, and procedural interventions. Pipeline includes 23 PHASE4, 25 PHASE3, 31 PHASE2. Research is sponsored by a mix of industry and academic institutions.

NCT ID	Title	Phase	Sponsor	Status
[NCT06984679](https://clinicaltrials.gov/study/NCT06984679)

Data assembled from 4 of 12 sources · Last updated Nov 3, 2026, 11:34 AM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Medical References

External Resources

Orphanet

European rare disease database

Orphanet:264665

GARD

Genetic and Rare Diseases Info Center

GARD:10559

Questions for Your Care Team

→Are any of the 843 active clinical trials a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→Is there a patient registry I should consider joining?

← Back to All Diseases

Research Type	Count	% of Total
Disease patterns and progression	109	37%
Research summaries	71	24%
Other research	70	24%
Laboratory research	15	5%
Clinical study results	12	4%
Testing and diagnosis research	9	3%
Patient case studies	5	2%

Kisho

primary interstitial lung disease specific to childhood

Overview

Diagnosis

Research Landscape

Medical References

External Resources

Orphanet

GARD

Questions for Your Care Team

Questions for Your Care Team

Recent Publications

Latest News & Developments

Longitudinal analysis of key factors associated with health-related quality of life in childhood interstitial lung disease.

An Update to the Classification, Evaluation, and Management of Childhood Interstitial Lung Disease in Infancy: An Official American Thoracic Society Clinical Practice Guideline.

Childhood Interstitial Lung Disease-Successful Application of a Stepwise Diagnostic Classification.

primary interstitial lung disease specific to childhood

Overview

Diagnosis

Research Landscape

Medical References

External Resources

Orphanet

GARD

Subtypes

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

Recent Publications

Latest News & Developments

Longitudinal analysis of key factors associated with health-related quality of life in childhood interstitial lung disease.

An Update to the Classification, Evaluation, and Management of Childhood Interstitial Lung Disease in Infancy: An Official American Thoracic Society Clinical Practice Guideline.

Childhood Interstitial Lung Disease-Successful Application of a Stepwise Diagnostic Classification.