A adenoid cystic carcinoma that involves the sublingual gland.
Comprehensive, easy-to-understand information about this condition
How we create this content →Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
The documentation surrounding sublingual gland adenoid cystic carcinoma is limited primarily due to its rarity. Conditions affecting fewer than 1 in 100,000 people often lack extensive clinical studies, making it difficult to establish comprehensive clinical features and treatment protocols. As research continues, there is hope that a clearer understanding will emerge, leading to better management strategies for patients.
To navigate your care effectively, consider seeking a specialist in head and neck oncology who has experience with rare salivary gland tumors. Resources such as the National Organization for Rare Disorders (NORD) at rarediseases.org can provide valuable information and support. Additionally, while there are no specific patient organizations identified for this condition, connecting with broader cancer support groups may offer community and resources. Engaging in any available natural history studies could also be beneficial for understanding the condition better.
Several orphan drugs have been designated for the treatment of sublingual gland adenoid cystic carcinoma, including a potent inhibitor of Gamma Secretase-mediated NOTCH signaling and a small molecule messenger RNA degrader of MYB. However, there are currently no active clinical trials available. For more information on ongoing research, you can search ClinicalTrials.gov for updates on potential studies as they become available.
Actionable guidance for navigating care for sublingual gland adenoid cystic carcinoma
To navigate your care effectively, consider seeking a specialist in head and neck oncology who has experience with rare salivary gland tumors. Resources such as the National Organization for Rare Disorders (NORD) at rarediseases.org can provide valuable information and support. Additionally, while there are no specific patient organizations identified for this condition, connecting with broader cancer support groups may offer community and resources. Engaging in any available natural history studies could also be beneficial for understanding the condition better.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
Consider asking your healthcare providers these condition-specific questions
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.