Sensorineural hearing loss which develops suddenly over a period of hours or a few days. It varies in severity from mild to total deafness. Sudden deafness can be due to head trauma, vascular diseases...
Comprehensive, easy-to-understand information about this condition
How we create this content →Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 31, 2026
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 31, 2026
The documentation surrounding sudden sensorineural hearing loss is limited, primarily due to its rarity, affecting 1-5 in 10,000 individuals. This low prevalence restricts the scope of systematic clinical studies, leading to gaps in understanding the full clinical spectrum and potential genetic underpinnings of the condition. As research continues, more insights may emerge.
To navigate your condition effectively, consider consulting an otolaryngologist (ENT specialist) who has experience with sudden sensorineural hearing loss. They can provide targeted assessments and management options. Additionally, you may want to explore clinical trials that are currently active, as they may offer access to new therapies. For more resources, visit ClinicalTrials.gov to find studies that you might qualify for. While there are no specific patient organizations identified for SSNHL, connecting with general hearing loss support groups may provide community and resources.
There are currently three orphan drugs designated for the treatment of sudden sensorineural hearing loss: UDU-stereoisomer of c-UJUun UNU-terminal UkUnhibitor, 6-fluoro-9-methyl-9H-pyrido[3,4-b]-indole, and pioglitazone. Additionally, there are 20 active clinical trials investigating various aspects of SSNHL. You can find more information about these trials at ClinicalTrials.gov by searching for sudden sensorineural hearing loss.
Actionable guidance for navigating care for sudden sensorineural hearing loss
To navigate your condition effectively, consider consulting an otolaryngologist (ENT specialist) who has experience with sudden sensorineural hearing loss. They can provide targeted assessments and management options. Additionally, you may want to explore clinical trials that are currently active, as they may offer access to new therapies. For more resources, visit ClinicalTrials.gov to find studies that you might qualify for. While there are no specific patient organizations identified for SSNHL, connecting with general hearing loss support groups may provide community and resources.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 31, 2026
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Organizations with approved therapies for this disease
No approved therapies yet
Research is ongoing — 3 companies have orphan drug designations for this disease
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