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visual snow syndrome - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

visual snow syndrome

MONDO:0018486

Also known as:visual snow

Find Clinical TrialsTrials

Overview

Visual snow syndrome is described as a persistent visual problem characterized by seeing snow-like dots. Migraines are a common symptom. Many people also see drifting blobs of varying size and shape (floaters), visual effects (entopic phenomenon), glare, halos, starbursts, trails, odd colors and shapes, and may have persistent recurrence of a visual image (palinopsia) and double vision. Additional symptoms may include fatigue, tinnitus, or depersonalization and depression. Most people have normal vision tests and normal brain images. Standard migraine treatments are often not helpful. There is no cure or effective treatment to completely relieve the symptoms, but medication seems to help some people with visual snow.

Clinical Trials4 registered · 3 recruiting

Patient Orgs1 organizations · The Visual Snow Initiative

Diagnosis

Biomarker and diagnostic research for visual snow syndrome has been reported in the published literature.

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

4 clinical trials registered, 3 recruiting. Interventions under study include other interventions and medical devices. Pipeline includes 3 NA. Research is primarily sponsored by academic and government institutions.

50 publications have been identified in PubMed for visual snow syndrome. Research spans Basic Science / Preclinical (27%), Epidemiology / Natural History (27%), and Review / Meta-Analysis (20%).

Research Type	Count	% of Total
Laboratory research	13

Data assembled from 4 of 12 sources · Last updated Sep 20, 2026, 11:11 AM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Patient Support

Patient Advocacy Groups

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The Visual Snow InitiativePrimary Focus

USWebsite ↗

Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.

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Medical References

External Resources

Orphanet

European rare disease database

Orphanet:420556

GARD

Genetic and Rare Diseases Info Center

GARD:12062

Questions for Your Care Team

→Are any of the 4 active clinical trials a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→How can I connect with The Visual Snow Initiative and other patient organizations for support?

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visual snow syndrome

Overview

Diagnosis

Research Landscape

Patient Support

Patient Advocacy Groups

Medical References

External Resources

Orphanet

GARD

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

Recent Publications