We extend our deepest condolences to Suzy's family, her friends, and all who cared about her.

Original title: “Statement from Laura Chanchien Parajón, MD, MPH, Director (Acting), CDC's National Center for Chronic Disease Prevention and Health Promotion, on the passing of Suzy Ellis, <em>Tips From Former Smokers®</em> participant”

CDC Expands Listeria Outbreak Alert to Include Additional Prepared Foods

Original title: “Listeria Outbreak to include more Prepared Foods”

3 additional illnesses and 1 additional death have been reported in this outbreak.

Original title: “CDC expands Listeria outbreak to include more prepared meals”

New CDC data shows U.S. cases of newborn syphilis increased for the 12th consecutive year in 2024

Original title: “CDC Reports Latest National Data on Syphilis in Newborns and Sexually Transmitted Infections (STIs)”

Rare disease grief differs from the grief we commonly associate with losing a loved one to death. […] The post RARE Advocacy Exchange Session 6 : Grieving a RARE Diagnosis appeared first on Global Genes.

Original title: “RARE Advocacy Exchange Session 6 : Grieving a RARE Diagnosis”

A CDC report found a dramatic increase in a dangerous type of drug-resistant bacteria.

Original title: “CDC Report Finds Sharp Rise in Dangerous Drug-Resistant Bacteria”

During my first week as a Harvard College junior, I was delighted to be given the opportunity […] The post A Student’s Perspective: Lessons from the 2025 RARE Drug Development Symposium appeared first on Global Genes.

Original title: “A Student’s Perspective: Lessons from the 2025 RARE Drug Development Symposium”

Michael Fletcher, a passionate advocate for quit-smoking efforts, has passed away

Original title: “Statement from Laura Chanchien Parajón, MD, MPH, Director (Acting), CDC's National Center for Chronic Disease Prevention and Health Promotion, on the passing of Michael Fletcher, <em>Tips From Former Smokers®</em> participant”

Applications have now opened for the Open Academy School 2026! The post Training, Connecting, Leading: Getting involved with the Open Academy programme  appeared first on EURORDIS-Rare Diseases Europe.

Original title: “Training, Connecting, Leading: Getting involved with the Open Academy programme ”

Sixteen people in ten states have gotten sick from the same strain of Salmonella.

Original title: “Certain Metabolic Meals home delivery foods reported in ongoing <em>Salmonella</em> outbreak investigation”

95 people from 14 states have gotten sick from the same strain of Salmonella.

Original title: “Nearly 100 people sick in <em>Salmonella </em>outbreak linked to recalled eggs”

This Global Genes Quick Guide is a resource for advocates focused on pressing topics causing challenges in […] The post Global Genes Guide to Genetic Diagnosis appeared first on Global Genes.

Original title: “Global Genes Guide to Genetic Diagnosis”

HHS Secretary Robert F. Kennedy, Jr. visited CDC headquarters in response to tragic gunfire attack

Original title: “Statement from the U.S. Department of Health and Human Services”

CDC launches Free Mind campaign providing teens with resources about substance use and mental health

Original title: “CDC Launches New Campaign to Address Youth Substance Use and Mental Health”

Christine Brader, a champion of anti-smoking efforts, has passed away at 62

Original title: “Statement from Laura Chanchien Parajón, MD, MPH, Director (Acting), CDC's National Center for Chronic Disease Prevention and Health Promotion, on the passing of Christine Brader, <em>Tips From Former Smokers</em><em>®</em> participant”

Susan Monarez, Ph.D., was sworn in today as Director of the CDC

Original title: “Secretary Kennedy Swears in Susan Monarez as CDC Director to Advance 'Make America Healthy Again' Agenda”

This Global Genes Quick Guide is a resource for advocates focused on pressing topics causing challenges in […] The post Global Genes Guide to Securing a State Proclamation for Rare Disease Awareness appeared first on Global Genes.

Original title: “Global Genes Guide to Securing a State Proclamation for Rare Disease Awareness”

11 people from 10 states sick with the same strain of Salmonella linked to frozen sprouted beans

Original title: “CDC warns of <em>Salmonella </em>outbreak linked to frozen sprouted beans”

We take a deeper look at the findings from our last Rare Barometer survey. The post Recognising the disabilities of those living with rare diseases  appeared first on EURORDIS-Rare Diseases Europe.

Original title: “Recognising the disabilities of those living with rare diseases ”

The CDC Advisory Committee on Immunization Practices (ACIP) held a meeting on June 25-26, 2025.

Original title: “CDC's Advisory Committee on Immunization Concludes Meeting with Joint Statement”