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What's new in your rare disease | Kisho

Not rare diseases news,
news about your rare disease.

Every story we pull is tagged to the disease it’s about — so you can filter to your condition and read only what matters.

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Community

The Vaccines for Children Program marks its 30th anniversary, highlighting its role in providing lifesaving vaccinations to children at no cost. This initiative has been crucial in improving child health and preventing disease.

Transcript for Vital Signs Telebriefing: Vaccines for Children Program Celebrates 30 Years of Providing Lifesaving Vaccinations to Children at No Cost

CDC Newsroom·about 2 years ago·Read at source →

Original title: “Transcript for Vital Signs Telebriefing: Vaccines for Children Program Celebrates 30 Years of Providing Lifesaving Vaccinations to Children at No Cost”

Community

The Vaccines for Children (VFC) program marks its 30th anniversary, providing essential vaccines at no cost to children from low-income families and those without health insurance. This initiative plays a crucial role in safeguarding children's health against preventable diseases.

Routine vaccinations are the best defense against illnesses. The VFC program was established to ensure that children below the federal poverty level and those without health insurance have access to critical, lifesaving vaccines that can protect their health throughout their lives.

CDC Newsroom·about 2 years ago·Read at source →

Original title: “Vaccines for Children Program Celebrates 30 Years of Providing Lifesaving Vaccines to Children at No Cost”

Community

The CDC reports an increase in cases and additional deaths linked to a Listeria outbreak associated with deli meats. This update highlights the ongoing public health concern regarding Listeria monocytogenes infections.

Media Alert - A CDC Food Safety Alert update regarding a multistate outbreak of Listeria monocytogenes infections has been posted at https://www.cdc.gov/listeria/outbreaks/delimeats-7-24/index.html.

CDC Newsroom·about 2 years ago·Read at source →

Original title: “More Cases and Additional Death Reported in <em>Listeria</em> Outbreak Linked to Meats Sliced at Delis”

Community

New CDC data reveals improvements in youth mental health, with a notable decrease in the percentage of students feeling persistently sad or hopeless. However, the report emphasizes the ongoing need for safer and more supportive school environments.

New CDC data released today highlight improvements in mental health among some United States teens, including decreases in the percentage of students feeling persistently sad or hopeless.

CDC Newsroom·about 2 years ago·Read at source →

Original title: “CDC Data Show Improvements in Youth Mental Health but Need for Safer and More Supportive Schools”

listeriosisCommunity

The CDC is investigating a multistate outbreak of Listeria monocytogenes infections linked to deli meats. This update highlights ongoing public health efforts to address food safety concerns.

A CDC Investigation Notice update regarding a multistate outbreak of Listeria monocytogenes infections has been posted at https://www.cdc.gov/listeria/outbreaks/delimeats-7-24/index.html.

CDC Newsroom·over 2 years ago·Read at source →

Original title: “CDC Investigating Multistate Outbreak of Listeria Infections Linked to Meats Sliced at Delis”

avian influenzaCommunity

CDC confirms three human cases of H5 bird flu among poultry workers in Northeast Colorado. This highlights ongoing concerns regarding the transmission of highly pathogenic avian influenza to humans.

Media Statement - Three additional human cases of highly pathogenic avian influenza (HPAI) A(H5) ("H5 bird flu") virus infection have been confirmed by the Centers for Disease Control and Prevention (CDC) in association with a second poultry farm in Northeast Colorado/Weld County.

CDC Newsroom·over 2 years ago·Read at source →

Original title: “CDC Confirms Three Human Cases of H5 Bird Flu Among Colorado Poultry Workers”

listeriosisCommunity

The CDC is investigating a multistate outbreak of listeria infections linked to deli meats. This outbreak highlights ongoing food safety concerns and the need for public awareness.

CDC Investigating Multistate Outbreak of Listeria Infections Linked to Meats Sliced at Delis

CDC Newsroom·over 2 years ago·Read at source →

Original title: “CDC Investigating Multistate Outbreak of Listeria Infections Linked to Meats Sliced at Delis”

Community

CDC's annual update reveals that over 70 million U.S. adults report having a disability, highlighting the significant prevalence of this population. The updated Disability and Health Data System (DHDS) offers accessible state-level health data.

Today CDC released the annual update to the Disability and Health Data System (DHDS), providing quick and easy online access to state-level health data on adults with disabilities.

CDC Newsroom·over 2 years ago·Read at source →

Original title: “CDC Data Shows Over 70 Million U.S. Adults Reported Having a Disability”

avian influenzaCommunity

CDC confirms four human cases of H5 bird flu among poultry workers in Colorado, highlighting ongoing public health concerns regarding avian influenza. This situation underscores the need for vigilance in monitoring and preventing zoonotic diseases.

Four human cases of highly pathogenic avian influenza (HPAI) A(H5) ("H5 bird flu") virus infection in the state of Colorado have been confirmed by the Centers for Disease Control and Prevention (CDC).

CDC Newsroom·over 2 years ago·Read at source →

Original title: “CDC Confirms Human Cases of H5 Bird Flu Among Colorado Poultry Workers”

avian influenzaCommunity

Colorado reports three presumptive positive cases of H5 bird flu among poultry workers, highlighting ongoing public health concerns. The state is monitoring the situation closely as it develops.

The state of Colorado has announced that three people have tested presumptive positive for highly pathogenic avian influenza (HPAI) A(H5) ("H5 bird flu") virus infection.

CDC Newsroom·over 2 years ago·Read at source →

Original title: “Colorado Reports Three Presumptive Positive H5 Cases in Poultry Workers”

avian influenzaCommunity

A fourth human case of H5 bird flu has been reported in Colorado, linked to an outbreak in dairy cows. This highlights ongoing public health concerns regarding highly pathogenic avian influenza.

A human case of highly pathogenic avian influenza (HPAI) A(H5) ("H5 bird flu") virus infection in the United States has been identified in the state of Colorado.

CDC Newsroom·over 2 years ago·Read at source →

Original title: “CDC Reports Fourth Human Case of H5 Bird Flu Tied to Dairy Cow Outbreak”

Community

The Mighty provides guidance for adults pursuing a rare disease diagnosis, emphasizing the importance of advocacy and support networks. This resource aims to empower individuals navigating the complexities of rare disease identification.

The Mighty - Rare Disease·over 2 years ago·Read at source →

Original title: “Advice for Adults Seeking a Rare Disease Diagnosis”

chronic inflammatory demyelinating polyradiculoneuropathy polyneuropathy, inflammatory demyelinating, chronicCommunity

A personal story highlights how a diagnosis of Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) motivated the author to engage in advocacy efforts. The narrative emphasizes the importance of community support and awareness for rare diseases.

The Mighty - Rare Disease·over 2 years ago·Read at source →

Original title: “How My CIDP Diagnosis Inspired Me to Give Back”

Community

CDC reports a continued rise in provisional suicide deaths in the United States for 2022, highlighting an ongoing public health crisis. The data underscores the urgent need for mental health initiatives and support systems.

CDC is releasing the latest provisional estimates for suicide deaths in the United States in 2022. The provisional estimates released today indicate that suicide deaths further increased in 2022.

CDC Newsroom·about 3 years ago·Read at source →

Original title: “Provisional Suicide Deaths in the United States, 2022”

chronic inflammatory demyelinating polyradiculoneuropathy polyneuropathy, inflammatory demyelinating, chronicCommunity

A personal story highlights the resilience of individuals diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) as they strive to pursue their dreams despite the challenges posed by the disease. This narrative emphasizes the importance of community support and advocacy for rare disease awareness.

The Mighty - Rare Disease·over 3 years ago·Read at source →

Original title: “I Won’t Let My CIDP Diagnosis Take Away My Dreams”

Community

AADC deficiency families share their experiences and strategies for support, highlighting the importance of community and advocacy. This personal narrative emphasizes the need for awareness and resources for this rare condition.

The Mighty - Rare Disease·over 3 years ago·Read at source →

Original title: “How Our Family Supports Our Child With AADC Deficiency”

Alagille syndromeCommunity

A new article outlines essential steps for parents after their child is diagnosed with Alagille Syndrome, emphasizing the importance of education, support networks, and medical management. This guidance aims to empower families navigating this rare disease.

The Mighty - Rare Disease·over 3 years ago·Read at source →

Original title: “The First 4 Steps to Take After Your Child Receives an Alagille Syndrome Diagnosis”

Alagille syndromeCommunity

The Mighty provides guidance for families preparing for medical appointments related to Alagille Syndrome. This resource aims to empower patients and caregivers with strategies to effectively communicate their needs and concerns.

The Mighty - Rare Disease·almost 4 years ago·Read at source →

Original title: “How to Prepare Your Family for an Appointment When Seeking Support For Alagille Syndrome”

Community

A heartfelt article discusses the challenges faced by parents of children with rare diseases, emphasizing the desire to make decisions collaboratively with their child rather than for them. It highlights the emotional toll and the need for greater awareness and support for families navigating these difficult circumstances.

The Mighty - Rare Disease·almost 4 years ago·Read at source →

Original title: “The Decision We Wish We Could Make With Our Daughter Rather Than For Her”

primary hyperoxaluria type 1 primary hyperoxaluria type 3+1 moreCommunity

A family's journey highlights the emotional impact of their son's diagnosis of Primary Hyperoxaluria Type 1 (PH1). Their story emphasizes the importance of community support and awareness in navigating rare diseases.

The Mighty - Rare Disease·almost 4 years ago·Read at source →

Original title: “How Our Family Found Hope After Our Son’s PH1 Diagnosis”

Previous29 / 101Next

Daily Briefings

Not rare diseases news,news about your rare disease.

Earlier

The Vaccines for Children Program marks its 30th anniversary, highlighting its role in providing lifesaving vaccinations to children at no cost. This initiative has been crucial in improving child health and preventing disease.

The Vaccines for Children (VFC) program marks its 30th anniversary, providing essential vaccines at no cost to children from low-income families and those without health insurance. This initiative plays a crucial role in safeguarding children's health against preventable diseases.

The CDC reports an increase in cases and additional deaths linked to a Listeria outbreak associated with deli meats. This update highlights the ongoing public health concern regarding Listeria monocytogenes infections.

New CDC data reveals improvements in youth mental health, with a notable decrease in the percentage of students feeling persistently sad or hopeless. However, the report emphasizes the ongoing need for safer and more supportive school environments.

The CDC is investigating a multistate outbreak of Listeria monocytogenes infections linked to deli meats. This update highlights ongoing public health efforts to address food safety concerns.

CDC confirms three human cases of H5 bird flu among poultry workers in Northeast Colorado. This highlights ongoing concerns regarding the transmission of highly pathogenic avian influenza to humans.

The CDC is investigating a multistate outbreak of listeria infections linked to deli meats. This outbreak highlights ongoing food safety concerns and the need for public awareness.

CDC's annual update reveals that over 70 million U.S. adults report having a disability, highlighting the significant prevalence of this population. The updated Disability and Health Data System (DHDS) offers accessible state-level health data.

CDC confirms four human cases of H5 bird flu among poultry workers in Colorado, highlighting ongoing public health concerns regarding avian influenza. This situation underscores the need for vigilance in monitoring and preventing zoonotic diseases.

Colorado reports three presumptive positive cases of H5 bird flu among poultry workers, highlighting ongoing public health concerns. The state is monitoring the situation closely as it develops.

A fourth human case of H5 bird flu has been reported in Colorado, linked to an outbreak in dairy cows. This highlights ongoing public health concerns regarding highly pathogenic avian influenza.

The Mighty provides guidance for adults pursuing a rare disease diagnosis, emphasizing the importance of advocacy and support networks. This resource aims to empower individuals navigating the complexities of rare disease identification.

A personal story highlights how a diagnosis of Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) motivated the author to engage in advocacy efforts. The narrative emphasizes the importance of community support and awareness for rare diseases.

CDC reports a continued rise in provisional suicide deaths in the United States for 2022, highlighting an ongoing public health crisis. The data underscores the urgent need for mental health initiatives and support systems.

AADC deficiency families share their experiences and strategies for support, highlighting the importance of community and advocacy. This personal narrative emphasizes the need for awareness and resources for this rare condition.

A new article outlines essential steps for parents after their child is diagnosed with Alagille Syndrome, emphasizing the importance of education, support networks, and medical management. This guidance aims to empower families navigating this rare disease.

The Mighty provides guidance for families preparing for medical appointments related to Alagille Syndrome. This resource aims to empower patients and caregivers with strategies to effectively communicate their needs and concerns.

A family's journey highlights the emotional impact of their son's diagnosis of Primary Hyperoxaluria Type 1 (PH1). Their story emphasizes the importance of community support and awareness in navigating rare diseases.

Not rare diseases news,
news about your rare disease.