Kisho is an information platform, not a medical provider. Nothing on this site constitutes medical advice, diagnosis, or treatment recommendations. All content is aggregated from publicly available sources (including ClinicalTrials.gov, PubMed, FDA.gov, and Orphanet) and is provided for informational purposes only. Clinical trial eligibility, treatment decisions, and any health-related actions should always be discussed with a qualified healthcare professional. Kisho does not endorse any specific therapy, organization, or clinical trial. Terms of use · Privacy policy
Every story we pull is tagged to the disease it’s about — so you can filter to your condition and read only what matters.
20 earlier
Original title: “Connecting and Collaborating: Lessons From a Decade of Caregiving and Activism”
Original title: “'You Shouldn't Have to Do This Yourself': Q&A With Jenni Nolan, Board Certified Patient Advocate”
Original title: “How One Singer With NMOSD Used Her Voice to Advocate for a Correct Diagnosis”
Original title: “Adjusting to a “New Normal”: Advice for Adults Newly Diagnosed with a Rare Disease”
Original title: “Living Fearlessly After An ALS Diagnosis”
This week I celebrated my 57th birthday! I wasn t going to reveal my age but then I thought, “wow I m 57….I made it to 57″. So with that thought I realised I should shout it from the mountain top. My health has not been kind for the past 15 years and on a few occasions [ ]
Original title: “How to Seize the Day in Life With Chronic Illness”
Original title: “Waiting for the Other Shoe to Drop: My Journey With PH1”
Original title: “How This Group Helped One Family Turn a Rare Disease Story Into a Song”
Top 7: Makings of a Good Neurologist vs. a Bad Neurologist By: Kris McElroy My journey with doctors has often felt like the online dating platforms swiping left or right after an appointment. I’d start with “Hi, my name is Kristian. I go by Kris. Nice to meet you”. If the response was “Kristina…” it [ ]
Original title: “What Makes a Good Neurologist vs. a Bad Neurologist”
The world tried to take away my smile. As a child, I learned very quickly that I was not to smile or to talk. My teeth were streaked with yellow and brown. They were pitted, grooved and unusually small, with gaps bigger than my actual teeth. Every smile, sigh, whisper and word I spoke [ ]
Original title: “It’s Time to Include Rare Dental Diseases in the Conversation About Disability”
It was the day my worst nightmare became my reality. Thanks to an anger filled slip of the tongue by a teacher .The whole cast of the musical review I was in ( the musical Review where I was the only freshman girl on the cast ) knew about my illness . The illness id spent a lifetime [ ]
Original title: “The Surprising Way My Castmates Reacted When My Teacher Disclosed My Chronic Illness”
The Feeding Tube Awareness Foundation estimates that approximately 20% of children under 18 are tube-fed, and there are more than 350 conditions that can require children to need nutritional support through tube feeding. I am thankful for this medical intervention that has helped many children to live, grow, and thrive. For us, the decision to [ ]
Original title: “What I Wish Doctors Had Told Us Before We Got Our Daughter's Feeding Tube”
This briefing to update you on CDC's 2019 Novel Coronavirus response. We are joined today by Dr. Nancy Messonnier Director of CDC's National Center for Immunization and Respiratory Diseases and rear admiral Denise Hinton from the food and drug administrations, she is the chief scientist.
Original title: “Transcript for CDC Telebriefing: CDC Update on Novel Coronavirus”
This briefing to update you on CDC's 2019 Novel Coronavirus response. We are joined today by Dr. Nancy Messonnier Director of CDC's National Center for Immunization and Respiratory Diseases and rear admiral Denise Hinton from the food and drug administrations, she is the chief scientist.
Original title: “Transcript for CDC Telebriefing: CDC Update on Novel Coronavirus”
HHS Press Conference: Remarks at Coronavirus Press Briefing
Original title: “HHS Press Conference: Remarks at Coronavirus Press Briefing”
Secretary Alex Azar will hold a press conference alongside CDC, NCIRD, and NIAID providing details on the Department's coordinated public health response to the 2019 Novel Coronavirus.
Original title: “HHS Press Conference: Update on 2019 Novel Coronavirus (2019-nCoV)”
CDC will hold its annual gathering of past and present disease detectives April 29-May 2, 2019, in Atlanta. The 68th Annual Epidemic Intelligence Service (EIS) Conference will feature presentations on groundbreaking investigations and often life-saving outbreak responses by current EIS officers and their laboratory counterparts, the Laboratory Leadership Service (LLS) fellows.
Original title: “68th Annual EIS Conference”
Tickborne diseases increasingly threaten the health of people in the United States. The growing threat includes newly discovered disease-causing germs, an increasing number of reported tickborne illnesses, expanding geographic ranges for ticks, and a novel tick species found in the US.
Original title: “Lyme and Other Tickborne Diseases Increasing”
Presentations include a wide range of health threats in U.S. and internationally
Original title: “CDC Hosts International Conference on Emerging Infectious Diseases”
The number of adolescents who are up to date on HPV vaccination - meaning they started and completed the HPV vaccine series - increased five percentage points from 2016 to 2017, according to results from a national survey published today in CDC's Morbidity and Mortality Weekly Report (MMWR).
Original title: “More US adolescents up to date on HPV vaccination”