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What's new in your rare disease | Kisho

Not rare diseases news,
news about your rare disease.

Every story we pull is tagged to the disease it’s about — so you can filter to your condition and read only what matters.

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Research

A new study identifies spatiotemporal atrophy subtypes in Alzheimer's disease, highlighting neurodegenerative-vascular associations that may offer prognostic value. This research could inform future therapeutic strategies and patient management.

spatiotemporal atrophy subtypes in alzheimer s disease neurodegenerative vascular associations and potential prognostic value

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Spatiotemporal Atrophy Subtypes in Alzheimer's Disease: Neurodegenerative-Vascular Associations and Potential Prognostic Value.”

adrenocortical carcinoma, hereditaryResearch

A recent study published in PubMed highlights the severity and management strategies for hypercortisolism in patients with adrenocortical carcinoma and overt Cushing's syndrome. The findings provide insights into treatment approaches for this rare condition.

severity and management of hypercortisolism in patients with adrenocortical carcinoma and overt cushing s syndrome

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Severity and management of hypercortisolism in patients with adrenocortical carcinoma and overt Cushing´s syndrome.”

Research

A recent systematic review and case series on spontaneous expulsive suprachoroidal hemorrhage provides new insights into its taxonomy and clinical implications. This research may enhance understanding and management of this rare ocular condition.

spontaneous expulsive suprachoroidal hemorrhage a case series taxonomy and systematic review

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Spontaneous expulsive suprachoroidal hemorrhage: a case series, taxonomy, and systematic review.”

juvenile dermatomyositis macrophage activation syndromeResearch

A systematic review highlights the complications of macrophage activation syndrome in juvenile dermatomyositis, providing insights into the disease's complexities. This research may inform future clinical approaches and management strategies.

systematic review of juvenile dermatomyositis complicated by macrophage activation syndrome

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “A systematic review of juvenile dermatomyositis complicated by macrophage activation syndrome.”

Research

A retrospective review highlights the incidence and prevention strategies for postprocedural bacteraemia following water vapour therapy for prostate treatment. This quality improvement initiative at a tertiary care center aims to enhance patient outcomes and reduce complications.

incidence and prevention of postprocedural bacteraemia and complications following water vapour therapy of the prostate a retrospective review and quality improvement initiative at a tertiary care centre

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Incidence and prevention of postprocedural bacteraemia and complications following water vapour therapy of the prostate: a retrospective review and quality improvement initiative at a tertiary care centre.”

acute fatty liver of pregnancyResearch

A retrospective study from 2018 to 2026 examines anesthetic management during cesarean deliveries in patients with acute fatty liver of pregnancy. The findings contribute to understanding the complexities of anesthesia in this rare condition.

anesthetic management of cesarean delivery in patients with acute fatty liver of pregnancy a retrospective single center study 2018 2026

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Anesthetic management of cesarean delivery in patients with acute fatty liver of pregnancy: a retrospective single-center study (2018-2026).”

hidradenitis suppurativaResearch

A real-world study demonstrates the efficacy of Secukinumab in treating moderate-to-severe hidradenitis suppurativa among Chinese patients over a 16-week period. This adds to the growing evidence supporting the use of this therapy for this challenging condition.

efficacy of secukinumab in chinese patients with moderate to severe hidradenitis suppurativa a 16 week single center prospective real world study

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Efficacy of Secukinumab in Chinese Patients with Moderate-to-Severe Hidradenitis Suppurativa: A 16-Week, Single-Center, Prospective, Real-World Study.”

uterine corpus perivascular epithelioid cell tumor neoplasm with perivascular epithelioid cell differentiation+1 moreResearch

A recent study published in PubMed examines the clinicopathological characteristics and surgical outcomes of primary hepatic perivascular epithelioid cell tumors (PEComas). This single-center cohort study provides valuable insights into the management of this rare tumor type.

clinicopathological characteristics and surgical outcomes of primary hepatic perivascular epithelioid cell tumor pecoma a single center cohort study

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Clinicopathological characteristics and surgical outcomes of primary hepatic perivascular epithelioid cell tumor (PEComa): A single-center cohort study.”

colorectal cancerResearch

A recent study explores the use of targeted next-generation sequencing (NGS) of preoperative circulating cell-free DNA in colorectal cancer patients. This research could enhance early detection and monitoring strategies for the disease.

targeted ngs of preoperative circulating cell free dna in colorectal cancer

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Targeted NGS of Preoperative Circulating Cell-Free DNA in Colorectal Cancer.”

Research

A systematic review highlights the potential of repurposing lenalidomide for treating refractory Behcet's disease. The study utilizes computational pharmacology to provide insights into this rare disease therapy.

repurposing lenalidomide for refractory behcet s disease systematic review and computational pharmacology insights for rare disease therapy

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Repurposing Lenalidomide for Refractory Behcet's Disease: Systematic Review and Computational Pharmacology Insights for Rare Disease Therapy.”

myelin oligodendrocyte glycoprotein antibody-associated diseaseResearch

A nationwide cross-sectional study in China reveals treatment patterns and the multidimensional burden of myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD). The findings highlight the need for improved access and tailored treatment strategies for affected patients.

treatment patterns access and multidimensional burden of myelin oligodendrocyte glycoprotein antibody associated disease mogad in china a nationwide cross sectional study

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Treatment patterns, access, and multidimensional burden of myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD) in China: A nationwide cross-sectional study.”

intussusceptionResearch

A case report details early-pregnancy intussusception with perforation following Roux-en-Y gastric bypass. This finding contributes to the understanding of complications associated with bariatric surgery during pregnancy.

early pregnancy intussusception with perforation after roux en y gastric bypass a case report

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Early-Pregnancy Intussusception with Perforation after Roux-en-Y Gastric Bypass: A Case Report.”

HIV-associated nephropathy HIV wasting syndrome+1 moreResearch

A recent study on lenacapavir resistance found that major resistance-associated mutations (RAMs) are rare and absent in intact HIV-1 proviral DNA. This research contributes to understanding the drug's efficacy in treating HIV infections.

lenacapavir resistance surveillance in full length hiv 1 proviral dna and circulating rna major rams are rare and absent in intact proviral dna

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Lenacapavir resistance surveillance in full-length HIV-1 proviral DNA and circulating RNA: Major RAMs are rare and absent in intact proviral DNA.”

cervical cancerResearch

A case report highlights the abscopal effect observed in a patient with recurrent cervical cancer following palliative radiotherapy after treatment with cemiplimab. This finding may provide insights into the potential synergistic effects of immunotherapy and radiotherapy in cancer treatment.

abscopal effect following palliative radiotherapy after cemiplimab in recurrent cervical cancer a case report

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Abscopal effect following palliative radiotherapy after cemiplimab in recurrent cervical cancer: a case report.”

B-cell childhood acute lymphoblastic leukemia acute lymphoblastic leukemia+1 moreResearch

A study from a tertiary care cancer center in a lower-middle-income country reports on the outcomes of pediatric precursor B cell acute lymphoblastic leukemia. The findings contribute to understanding treatment efficacy and patient management in resource-limited settings.

outcomes of pediatric precursor b cell acute lymphoblastic leukemia a tertiary care cancer center experience from a lower middle income country

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Outcomes of Pediatric Precursor B Cell Acute Lymphoblastic Leukemia: A Tertiary Care Cancer Center Experience from a Lower-Middle-Income Country.”

type 2 diabetes mellitusResearch

A systematic review evaluates the cardiorenal protective effects of glucagon-like peptide-1 receptor agonists versus sodium-glucose cotransporter-2 inhibitors in patients with type 2 diabetes. The findings contribute to understanding treatment options for managing complications associated with this condition.

cardiorenal protection in type 2 diabetes a systematic review comparing glucagon like peptide 1 receptor agonists and sodium glucose cotransporter 2 inhibitors

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Cardiorenal Protection in Type 2 Diabetes: A Systematic Review Comparing Glucagon-Like Peptide-1 Receptor Agonists and Sodium-Glucose Cotransporter-2 Inhibitors.”

Marfan syndrome neonatal Marfan syndromeResearch

Recent research highlights novel corneal neural features associated with FBN1-related Marfan syndrome. These findings could enhance understanding of the disease's impact on ocular health.

novel findings of corneal neural features in fbn1 related marfan syndrome

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Novel findings of corneal neural features in FBN1-related marfan syndrome.”

Research

A case study highlights a successful pregnancy in a patient with metastatic functioning midgut neuroendocrine tumor while receiving lanreotide post-peptide receptor radionuclide therapy. This finding may provide insights into managing pregnancies in patients with similar rare tumors.

pregnancy in a patient with metastatic functioning midgut neuroendocrine tumor receiving lanreotide after peptide receptor radionuclide therapy

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Pregnancy in a patient with metastatic functioning midgut neuroendocrine tumor receiving lanreotide after peptide receptor radionuclide therapy.”

leiomyosarcoma retroperitoneal leiomyosarcomaResearch

A recent publication discusses the management strategies for soft tissue and visceral leiomyosarcomas, highlighting current treatment approaches and outcomes. This research contributes to the understanding of this rare cancer type.

management of soft tissue and visceral leiomyosarcomas

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Management of Soft Tissue and Visceral Leiomyosarcomas.”

Research

A recent study published in PubMed indicates that subarachnoid contrast staining is not linked to endovascular therapy. This finding may influence clinical practices and patient management strategies in related procedures.

subarachnoid contrast staining not attributable to endovascular therapy

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Subarachnoid contrast staining not attributable to endovascular therapy.”

Previous106 / 482Next

Daily Briefings

Not rare diseases news,news about your rare disease.

Earlier

A new study identifies spatiotemporal atrophy subtypes in Alzheimer's disease, highlighting neurodegenerative-vascular associations that may offer prognostic value. This research could inform future therapeutic strategies and patient management.

A recent study published in PubMed highlights the severity and management strategies for hypercortisolism in patients with adrenocortical carcinoma and overt Cushing's syndrome. The findings provide insights into treatment approaches for this rare condition.

A recent systematic review and case series on spontaneous expulsive suprachoroidal hemorrhage provides new insights into its taxonomy and clinical implications. This research may enhance understanding and management of this rare ocular condition.

A systematic review highlights the complications of macrophage activation syndrome in juvenile dermatomyositis, providing insights into the disease's complexities. This research may inform future clinical approaches and management strategies.

A retrospective review highlights the incidence and prevention strategies for postprocedural bacteraemia following water vapour therapy for prostate treatment. This quality improvement initiative at a tertiary care center aims to enhance patient outcomes and reduce complications.

A retrospective study from 2018 to 2026 examines anesthetic management during cesarean deliveries in patients with acute fatty liver of pregnancy. The findings contribute to understanding the complexities of anesthesia in this rare condition.

A real-world study demonstrates the efficacy of Secukinumab in treating moderate-to-severe hidradenitis suppurativa among Chinese patients over a 16-week period. This adds to the growing evidence supporting the use of this therapy for this challenging condition.

A recent study published in PubMed examines the clinicopathological characteristics and surgical outcomes of primary hepatic perivascular epithelioid cell tumors (PEComas). This single-center cohort study provides valuable insights into the management of this rare tumor type.

A recent study explores the use of targeted next-generation sequencing (NGS) of preoperative circulating cell-free DNA in colorectal cancer patients. This research could enhance early detection and monitoring strategies for the disease.

A systematic review highlights the potential of repurposing lenalidomide for treating refractory Behcet's disease. The study utilizes computational pharmacology to provide insights into this rare disease therapy.

A nationwide cross-sectional study in China reveals treatment patterns and the multidimensional burden of myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD). The findings highlight the need for improved access and tailored treatment strategies for affected patients.

A case report details early-pregnancy intussusception with perforation following Roux-en-Y gastric bypass. This finding contributes to the understanding of complications associated with bariatric surgery during pregnancy.

A recent study on lenacapavir resistance found that major resistance-associated mutations (RAMs) are rare and absent in intact HIV-1 proviral DNA. This research contributes to understanding the drug's efficacy in treating HIV infections.

A case report highlights the abscopal effect observed in a patient with recurrent cervical cancer following palliative radiotherapy after treatment with cemiplimab. This finding may provide insights into the potential synergistic effects of immunotherapy and radiotherapy in cancer treatment.

A study from a tertiary care cancer center in a lower-middle-income country reports on the outcomes of pediatric precursor B cell acute lymphoblastic leukemia. The findings contribute to understanding treatment efficacy and patient management in resource-limited settings.

Recent research highlights novel corneal neural features associated with FBN1-related Marfan syndrome. These findings could enhance understanding of the disease's impact on ocular health.

A case study highlights a successful pregnancy in a patient with metastatic functioning midgut neuroendocrine tumor while receiving lanreotide post-peptide receptor radionuclide therapy. This finding may provide insights into managing pregnancies in patients with similar rare tumors.

A recent publication discusses the management strategies for soft tissue and visceral leiomyosarcomas, highlighting current treatment approaches and outcomes. This research contributes to the understanding of this rare cancer type.

A recent study published in PubMed indicates that subarachnoid contrast staining is not linked to endovascular therapy. This finding may influence clinical practices and patient management strategies in related procedures.

Not rare diseases news,
news about your rare disease.