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What's new in your rare disease | Kisho

Not rare diseases news,
news about your rare disease.

Every story we pull is tagged to the disease it’s about — so you can filter to your condition and read only what matters.

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Research

Splenic cystic lymphangioma mimicking hydatid cyst in an adult: a rare diagnostic challenge.

PubMed Rare Disease·8 months ago·Read at source →

Research

Quantifying the fidelity of in vitro human cell culture systems using a biomedical foundation model.

PubMed Rare Disease·8 months ago·Read at source →

Research

Urinary metal mixtures and cardio-kidney-metabolic risk in adults from a legacy-contaminated area: Repeated-measures cohort evidence and computational validation.

PubMed Rare Disease·8 months ago·Read at source →

Research

Prevalence and clinical characteristics of secondary hypertension in young hypertensive tertiary care patients.

PubMed Rare Disease·8 months ago·Read at source →

Research

Study Design of the Global Prospective Hemolytic Disease of the Fetus and Newborn Registry (GERANIUM).

PubMed Rare Disease·8 months ago·Read at source →

Research

Thoracoscopic-assisted right thoracic approach for resection of proximal left main bronchial adenoid cystic carcinoma.

PubMed Rare Disease·8 months ago·Read at source →

Research

A hemodialysis patient with recurrent Wernicke encephalopathy showed reversible lentiform fork sign: A case report.

PubMed Rare Disease·8 months ago·Read at source →

Research

Renal cell carcinoma presenting with orbital metastasis as the initial symptom: A case report.

PubMed Rare Disease·8 months ago·Read at source →

autism spectrum disorder autism spectrum disorder 2Research

Mesenchymal stem/stromal cell-based therapies for autism spectrum disorder: emerging evidence and clinical prospects.

PubMed Rare Disease·8 months ago·Read at source →

Research

Long-term efficacy and safety of pegunigalsidase alfa administered every 4 weeks in adults with Fabry disease: results from up to 5 years of the BRIGHT F51 phase III, open-label extension study.

PubMed Rare Disease·8 months ago·Read at source →

Research

Bridging the gap between patient and physician perspectives on management of generalized myasthenia gravis: a Delphi consensus study.

PubMed Rare Disease·8 months ago·Read at source →

Research

A case report of post-traumatic eczema of the breast mimicking breast cancer: A diagnostic challenge.

PubMed Rare Disease·8 months ago·Read at source →

Research

Loss of productivity among commercially insured patients with pulmonary arterial hypertension in the United States.

PubMed Rare Disease·8 months ago·Read at source →

Research

Scalable and Robust Artificial Intelligence for Spine Alignment Assessment: Multicenter Study Enabled by Real-Time Data Transformation.

PubMed Rare Disease·8 months ago·Read at source →

Research

Functional integration of an autologous engineered esophagus in a large-animal model.

PubMed Rare Disease·8 months ago·Read at source →

Research

Systolic propulsion of the eyeballs in severe tricuspid regurgitation: a case series and review of the literature.

PubMed Rare Disease·8 months ago·Read at source →

congenital hypogonadotropic hypogonadism isolated congenital hypogonadotropic hypogonadism+1 moreResearch

A new study evaluates a co-designed website aimed at improving resources for congenital hypogonadotropic hypogonadism. This initiative highlights the importance of patient involvement in developing educational tools for rare diseases.

from patients to partners evaluating a co designed website for congenital hypogonadotropic hypogonadism

PubMed Rare Disease·8 months ago·Read at source →

Original title: “From patients to partners: Evaluating a co-designed website for congenital hypogonadotropic hypogonadism.”

Research

A new publication discusses controversial issues in the clinical investigation of rare disease drug development, highlighting challenges faced by researchers and regulatory bodies. The insights aim to inform future strategies for improving clinical trial designs in rare diseases.

controversial issues in clinical investigation of rare disease drug development

PubMed Rare Disease·8 months ago·Read at source →

Original title: “Controversial issues in clinical investigation of rare disease drug development.”

Research

A recent case-control study identifies key predictors of metastatic cutaneous Crohn's disease, enhancing understanding of this rare condition. The findings may inform future research and treatment strategies.

identifying key predictors of metastatic cutaneous crohn s disease a case control study

PubMed Rare Disease·8 months ago·Read at source →

Original title: “Identifying key predictors of metastatic cutaneous Crohn's disease: a case-control study.”

Research

A recent study analyzes African representation in randomized controlled trials published in top medical and cardiovascular journals from 2019 to 2024. The findings highlight the need for increased diversity in clinical research to ensure broader applicability of results.

african representation in randomized controlled trials published in leading medical and cardiovascular journals 2019 2024

PubMed Rare Disease·8 months ago·Read at source →

Original title: “African Representation in Randomized Controlled Trials Published in Leading Medical and Cardiovascular Journals, 2019-2024.”

Previous393 / 488Next

Daily Briefings

Not rare diseases news,news about your rare disease.

Earlier

Splenic cystic lymphangioma mimicking hydatid cyst in an adult: a rare diagnostic challenge.

Quantifying the fidelity of in vitro human cell culture systems using a biomedical foundation model.

Urinary metal mixtures and cardio-kidney-metabolic risk in adults from a legacy-contaminated area: Repeated-measures cohort evidence and computational validation.

Prevalence and clinical characteristics of secondary hypertension in young hypertensive tertiary care patients.

Study Design of the Global Prospective Hemolytic Disease of the Fetus and Newborn Registry (GERANIUM).

Thoracoscopic-assisted right thoracic approach for resection of proximal left main bronchial adenoid cystic carcinoma.

A hemodialysis patient with recurrent Wernicke encephalopathy showed reversible lentiform fork sign: A case report.

Renal cell carcinoma presenting with orbital metastasis as the initial symptom: A case report.

Mesenchymal stem/stromal cell-based therapies for autism spectrum disorder: emerging evidence and clinical prospects.

Long-term efficacy and safety of pegunigalsidase alfa administered every 4 weeks in adults with Fabry disease: results from up to 5 years of the BRIGHT F51 phase III, open-label extension study.

Bridging the gap between patient and physician perspectives on management of generalized myasthenia gravis: a Delphi consensus study.

A case report of post-traumatic eczema of the breast mimicking breast cancer: A diagnostic challenge.

Loss of productivity among commercially insured patients with pulmonary arterial hypertension in the United States.

Scalable and Robust Artificial Intelligence for Spine Alignment Assessment: Multicenter Study Enabled by Real-Time Data Transformation.

Functional integration of an autologous engineered esophagus in a large-animal model.

Systolic propulsion of the eyeballs in severe tricuspid regurgitation: a case series and review of the literature.

A new study evaluates a co-designed website aimed at improving resources for congenital hypogonadotropic hypogonadism. This initiative highlights the importance of patient involvement in developing educational tools for rare diseases.

A new publication discusses controversial issues in the clinical investigation of rare disease drug development, highlighting challenges faced by researchers and regulatory bodies. The insights aim to inform future strategies for improving clinical trial designs in rare diseases.

A recent case-control study identifies key predictors of metastatic cutaneous Crohn's disease, enhancing understanding of this rare condition. The findings may inform future research and treatment strategies.

A recent study analyzes African representation in randomized controlled trials published in top medical and cardiovascular journals from 2019 to 2024. The findings highlight the need for increased diversity in clinical research to ensure broader applicability of results.

Not rare diseases news,
news about your rare disease.