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pulmonary hypertension, primary, 7 News | Kisho

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pulmonary hypertension, primary, 7

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pulmonary hypertension, primary, 7

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pulmonary hypertension pulmonary hypertension, primary, 6+1 moreResearch

A nationwide multicenter study investigates the long-term exposure to PM2.5 and its association with adverse pregnancy events in women with pulmonary hypertension. The findings contribute to understanding environmental impacts on pregnancy outcomes in this vulnerable population.

long term exposure to pm 2 5 and risk of adverse pregnancy events in women with pulmonary hypertension a nationwide multicenter study

PubMed Rare Disease·about 1 month ago·Read at source →

Original title: “Long-term Exposure to PM(2.5) and Risk of Adverse Pregnancy Events in Women with Pulmonary Hypertension: A Nationwide Multicenter Study.”

Lutembacher syndrome pulmonary hypertension+1 moreResearch

A case report details the late presentation of Lutembacher syndrome in an elderly female, highlighting severe pulmonary hypertension and tricuspid regurgitation complications. This case underscores the need for awareness of Lutembacher syndrome in older patients.

late presentation of lutembacher syndrome with severe pulmonary hypertension and tricuspid regurgitation complicated by lower respiratory tract infection in an elderly female a fatal case report

PubMed Rare Disease·about 1 month ago·Read at source →

Original title: “Late Presentation of Lutembacher Syndrome with Severe Pulmonary Hypertension and Tricuspid Regurgitation Complicated by Lower Respiratory Tract Infection in an Elderly Female: A Fatal Case Report.”

pulmonary hypertension pulmonary hypertension, primary, 6+1 moreResearch

A recent EUSTAR cohort study evaluates the effectiveness of oral anticoagulants in treating precapillary pulmonary hypertension linked to systemic sclerosis. The findings contribute to understanding treatment options for this rare condition.

effectiveness of oral anticoagulants in precapillary pulmonary hypertension associated with systemic sclerosis a eustar cohort study

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Effectiveness of oral anticoagulants in precapillary pulmonary hypertension associated with systemic sclerosis: a EUSTAR cohort study.”

pulmonary hypertension pulmonary hypertension, primary, 6+1 moreResearch

A new study provides an updated etiological and clinical classification of pulmonary hypertension in children, enhancing understanding of this complex condition. This classification aims to improve diagnosis and treatment strategies for affected pediatric patients.

etiological and clinical classification of pulmonary hypertension in children

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “[Etiological and clinical classification of pulmonary hypertension in children].”

pulmonary hypertension pulmonary hypertension, primary, 6+1 moreResearch

A new study explores the link between pulmonary hypertension and various genetic syndromes, expanding the understanding of this complex disease. The findings may inform future research and treatment strategies for patients with pulmonary hypertension associated with genetic conditions.

beyond heritable pah pulmonary hypertension in genetic syndromes

PubMed Rare Disease·about 2 months ago·Read at source →

Original title: “Beyond Heritable PAH: Pulmonary Hypertension in Genetic Syndromes.”

pulmonary hypertension pulmonary hypertension, primary, 6+1 moreTrials & approvals

Roivant reports positive results from the Phase 2 PHocus trial of mosliciguat for pulmonary hypertension associated with interstitial lung disease (PH-ILD). The study highlights the drug's potential in addressing significant unmet medical needs in this progressive condition.

08, 2026 (GLOBE NEWSWIRE) -- Roivant (Nasdaq: ROIV) today announced positive results from its Phase 2 PHocus clinical trial evaluating mosliciguat for the treatment of pulmonary hypertension associated with interstitial lung disease (PH-ILD), a progressive and life-threatening condition with ... 08, 2026 (GLOBE NEWSWIRE) -- Roivant (Nasdaq: ROIV) today announced positive results from its Phase 2 PHocus clinical trial evaluating mosliciguat for the treatment of pulmonary hypertension associated with interstitial lung disease (PH-ILD), a progressive and life-threatening condition with significant unmet medical needs for patients. Our forward-looking statements include, but are not limited to, statements regarding our or our management team’s expectations, hopes, beliefs, intentions or strategies regarding the future, and statements that are not historical facts, including statements about the clinical and therapeutic potential of our product and product candidates, the availability and success of topline results from our ongoing clinical trials, any commercial potential of our product and product candidates following applicable regulatory approvals and the outcome of any pending litigation. About the PHrontier Study The Phase 3 PHrontier clinical study is a randomized (1:1), double-blind, placebo-controlled, global trial evaluating the safety and efficacy of mosliciguat in adult patients with PH-ILD. The study is currently designed to enroll approximately 375 patients worldwide. About Pulmonary Hypertension and Interstitial Lung Disease Pulmonary hypertension (PH) is a progressive and debilitating condition characterized by high blood pressure in the blood vessels of the lungs. It is a terrific example of the Roivant model working as planned: finding high-potential molecules and going after diseases where the patient needs are enormous and where the drug can truly shine.” · “Our robust Phase 2 PHocus study results, in conjunction with mosliciguat’s inhaled, once-a-day administration and potential first-in-class sGC activator profile, strongly position it as a potential single agent treatment and combination therapy for patients with PH-ILD.

Treatment & Clinical News·about 2 months ago·Read at source →

Original title: “Roivant Announces Positive Results from PHocus Study of Mosliciguat in Patients with Pulmonary Hypertension Associated with Interstitial Lung Disease (PH-ILD) and Unveils Ongoing Phase 3 PHrontier Study - BioSpace”

pulmonary venoocclusive disease pulmonary venoocclusive disease 1+1 moreResearch

A recent study highlights pulmonary veno-occlusive disease as a potential presentation of congenital heart disease-associated pulmonary hypertension. This discovery may influence diagnostic approaches and treatment strategies for affected patients.

pulmonary veno occlusive disease presenting as congenital heart disease associated pulmonary hypertension

PubMed Rare Disease·3 months ago·Read at source →

Original title: “Pulmonary Veno-Occlusive Disease Presenting as Congenital Heart Disease-Associated Pulmonary Hypertension.”

pulmonary hypertension pulmonary hypertension, primary, 6+1 moreResearch

A recent study evaluates the diagnostic performance of the main pulmonary artery-to-ascending aorta diameter ratio for identifying pulmonary hypertension in children with left-to-right shunt congenital heart disease. This research provides insights into non-invasive diagnostic methods for a critical condition affecting pediatric patients.

diagnostic performance of the main pulmonary artery to ascending aorta diameter ratio for pulmonary hypertension defined by mean pulmonary arterial pressure in children with left to right shunt congenital heart disease

PubMed Rare Disease·3 months ago·Read at source →

Original title: “Diagnostic performance of the main pulmonary artery-to-ascending aorta diameter ratio for pulmonary hypertension defined by mean pulmonary arterial pressure in children with left-to-right shunt congenital heart disease.”

pulmonary hypertension pulmonary hypertension, primary, 6+1 moreResearch

A recent study published in PubMed explores the ECG evolution in patients with severe pulmonary hypertension, highlighting the phenomenon of pseudo-infarction reversal in right precordial leads. This research could enhance diagnostic accuracy and understanding of cardiac manifestations in pulmonary hypertension.

pseudo infarction reversal in right precordial leads ecg evolution in severe pulmonary hypertension

PubMed Rare Disease·3 months ago·Read at source →

Original title: “Pseudo-Infarction Reversal in Right Precordial Leads: ECG Evolution in Severe Pulmonary Hypertension.”

methylmalonic acidemia pulmonary hypertension+1 moreResearch

Recent research highlights methylmalonic acidemia as a reversible cause of pediatric pulmonary hypertension, previously misdiagnosed as idiopathic pulmonary arterial hypertension. This discovery could lead to improved diagnostic accuracy and treatment options for affected children.

misdiagnosed as idiopathic pah methylmalonic acidemia as a reversible cause of pediatric pulmonary hypertension

PubMed Rare Disease·3 months ago·Read at source →

Original title: “Misdiagnosed as Idiopathic PAH: Methylmalonic Acidemia as a Reversible Cause of Pediatric Pulmonary Hypertension.”

pulmonary hypertension pulmonary hypertension, primary, 6+1 moreResearch

A recent study published in PubMed highlights the outcomes of atrial flutter ablation in patients with pulmonary hypertension. The findings contribute to understanding the efficacy of this procedure in a specialized patient population.

atrial flutter ablation in pulmonary hypertension a national referral center experience

PubMed Rare Disease·5 months ago·Read at source →

Original title: “Atrial flutter ablation in pulmonary hypertension: a national referral center experience.”

chronic thromboembolic pulmonary hypertension pulmonary hypertension+1 moreResearch

A case report highlights the management of chronic thromboembolic pulmonary hypertension during pregnancy through pulmonary endarterectomy. This study reviews clinical challenges and provides insights into treatment approaches for this rare condition.

case of chronic thromboembolic pulmonary hypertension and pregnancy managed with pulmonary endarterectomy clinical challenges case report and literature review

PubMed Rare Disease·5 months ago·Read at source →

Original title: “A Case of Chronic Thromboembolic Pulmonary Hypertension and Pregnancy, Managed With Pulmonary Endarterectomy: Clinical Challenges, Case Report, and Literature Review.”

pulmonary hypertension pulmonary hypertension, primary, 6+1 moreResearch

A recent study highlights isolated absence of the right pulmonary artery as a rare cause of pulmonary hypertension in adults. This discovery may lead to better understanding and management of this condition.

isolated absence of the right pulmonary artery a rare cause of pulmonary hypertension in adults

PubMed Rare Disease·5 months ago·Read at source →

Original title: “Isolated Absence of the Right Pulmonary Artery: A Rare Cause of Pulmonary Hypertension in Adults.”

pulmonary hypertension pulmonary hypertension, primary, 6+1 moreCommunity

David Ross continues to advocate for rare diseases, particularly pulmonary hypertension associated with interstitial lung disease (PH-ILD), two decades after losing his loved one. His advocacy highlights the ongoing need for compassion and dedication in supporting patients facing these challenges.

David Ross: Continuing Advocacy for Rare Diseases Two Decades After Losing a Loved One / cancer, David Ross, IPF, Karen Yada Ross, Lung cancer, Natera, Karen continues to advocate for rare diseases such as PH-ILD with a sense of dedication, humility, and compassion. As part of the Pulmovant team, she aspires to make a meaningful difference for these courageous patients.”

Community & Advocacy·6 months ago·Read at source →

Original title: “David Ross: Continuing Advocacy for Rare Diseases Two Decades After Losing a Loved One - OncoDaily”

pulmonary hypertension pulmonary hypertension, primary, 6+1 moreResearch

Recent research identifies genetic variants linked to pulmonary hypertension in patients with chronic obstructive pulmonary disease. This discovery could pave the way for targeted therapies and improved patient outcomes.

genetic variants in pulmonary hypertension associated with chronic obstructive pulmonary disease

PubMed Rare Disease·6 months ago·Read at source →

Original title: “Genetic variants in pulmonary hypertension associated with chronic obstructive pulmonary disease.”

Adams-Oliver syndrome Adams-Oliver syndrome 5+1 moreResearch

Recent research identifies mutations in the VCP gene as a cause of Adams-Oliver syndrome, which may occur with or without pulmonary hypertension. This discovery enhances understanding of the genetic basis of this rare condition.

mutations in vcp cause adams oliver syndrome with or without pulmonary hypertension

PubMed Rare Disease·7 months ago·Read at source →

Original title: “Mutations in VCP cause Adams-Oliver syndrome with or without pulmonary hypertension.”

pulmonary hypertension pulmonary hypertension, primary, 6+1 moreCommunity

A personal account highlights the challenges faced by patients with rare diseases, specifically focusing on the journey to a diagnosis of pulmonary hypertension. The narrative emphasizes the need for healthcare providers to better understand and empathize with the patient experience, advocating for improved communication and recognition of patient voices.

For years, I knew something wasn’t right. I was experiencing symptoms that affected my daily life—shortness of breath, fatigue, and physical limitations that didn’t make… Continue reading The Diagnosis They Missed: A Journey from Dismissal to Advocacy I speak about the gaps that exist between patients and healthcare systems. I share the emotional and mental toll of living with chronic illness—the part that often goes unseen. And I work to help healthcare providers and organizations better understand what it truly means to live with a rare condition. My hope is that by sharing my story, others will feel less alone—and that those in positions to make change will listen more closely, act more compassionately, and recognize the value of the patient voice. No one should have to fight to be believed. Podcast: I’m Aware That I’m Rare: the phaware® podcast It took years before I finally received answers. By the time I was diagnosed with pulmonary hypertension—a rare and serious condition—my reality had already changed. What I had been feeling all along was real. The signs were there. Through this journey, I realized that so many people living with rare and chronic conditions face the same experience: delayed diagnosis, being unheard, and navigating a healthcare system that isn’t always equipped to recognize complex illnesses.

Community & Advocacy·7 months ago·Read at source →

Original title: “The Diagnosis They Missed: A Journey from Dismissal to Advocacy - Rare Disease Day 2026”

pulmonary hypertension pulmonary hypertension, primary, 6+1 moreResearch

New research identifies platelet gene signatures that can detect pulmonary artery stenosis in patients with pulmonary hypertension. This discovery could enhance diagnostic accuracy and patient management in this challenging condition.

platelet gene signatures detecting pulmonary artery stenosis in patients with pulmonary hypertension

PubMed Rare Disease·8 months ago·Read at source →

Original title: “Platelet gene signatures detecting pulmonary artery stenosis in patients with pulmonary hypertension.”

pulmonary hypertension pulmonary hypertension, primary, 6+1 moreResearch

A recent case study highlights a successful surgical repair of a late-presenting aortopulmonary window in a patient with severe pulmonary hypertension. This breakthrough suggests potential for reversing previously deemed irreversible conditions.

reversing the irreversible a case of successful surgical repair in a late presenting aortopulmonary window with severe pulmonary hypertension

PubMed Rare Disease·8 months ago·Read at source →

Original title: “Reversing the irreversible? A case of successful surgical repair in a late-presenting aortopulmonary window with severe pulmonary hypertension.”

pulmonary venoocclusive disease pulmonary venoocclusive disease 1+1 moreResearch

A recent study published in PubMed examines the impact of pulmonary veno-occlusive disease on posttransplant survival rates in patients with pulmonary hypertension. The findings highlight the need for tailored posttransplant management strategies for this patient population.

impact of pulmonary veno occlusive disease on posttransplant survival in pulmonary hypertension

PubMed Rare Disease·8 months ago·Read at source →

Original title: “Impact of Pulmonary Veno-Occlusive Disease on Posttransplant Survival in Pulmonary Hypertension.”

1 / 2Next

Daily Briefings

Not rare diseases news,news about your rare disease.

Earlier

A nationwide multicenter study investigates the long-term exposure to PM2.5 and its association with adverse pregnancy events in women with pulmonary hypertension. The findings contribute to understanding environmental impacts on pregnancy outcomes in this vulnerable population.

A case report details the late presentation of Lutembacher syndrome in an elderly female, highlighting severe pulmonary hypertension and tricuspid regurgitation complications. This case underscores the need for awareness of Lutembacher syndrome in older patients.

A recent EUSTAR cohort study evaluates the effectiveness of oral anticoagulants in treating precapillary pulmonary hypertension linked to systemic sclerosis. The findings contribute to understanding treatment options for this rare condition.

A new study provides an updated etiological and clinical classification of pulmonary hypertension in children, enhancing understanding of this complex condition. This classification aims to improve diagnosis and treatment strategies for affected pediatric patients.

A new study explores the link between pulmonary hypertension and various genetic syndromes, expanding the understanding of this complex disease. The findings may inform future research and treatment strategies for patients with pulmonary hypertension associated with genetic conditions.

Roivant reports positive results from the Phase 2 PHocus trial of mosliciguat for pulmonary hypertension associated with interstitial lung disease (PH-ILD). The study highlights the drug's potential in addressing significant unmet medical needs in this progressive condition.

A recent study highlights pulmonary veno-occlusive disease as a potential presentation of congenital heart disease-associated pulmonary hypertension. This discovery may influence diagnostic approaches and treatment strategies for affected patients.

Recent research highlights methylmalonic acidemia as a reversible cause of pediatric pulmonary hypertension, previously misdiagnosed as idiopathic pulmonary arterial hypertension. This discovery could lead to improved diagnostic accuracy and treatment options for affected children.

A recent study published in PubMed highlights the outcomes of atrial flutter ablation in patients with pulmonary hypertension. The findings contribute to understanding the efficacy of this procedure in a specialized patient population.

A case report highlights the management of chronic thromboembolic pulmonary hypertension during pregnancy through pulmonary endarterectomy. This study reviews clinical challenges and provides insights into treatment approaches for this rare condition.

A recent study highlights isolated absence of the right pulmonary artery as a rare cause of pulmonary hypertension in adults. This discovery may lead to better understanding and management of this condition.

David Ross continues to advocate for rare diseases, particularly pulmonary hypertension associated with interstitial lung disease (PH-ILD), two decades after losing his loved one. His advocacy highlights the ongoing need for compassion and dedication in supporting patients facing these challenges.

Recent research identifies genetic variants linked to pulmonary hypertension in patients with chronic obstructive pulmonary disease. This discovery could pave the way for targeted therapies and improved patient outcomes.

Recent research identifies mutations in the VCP gene as a cause of Adams-Oliver syndrome, which may occur with or without pulmonary hypertension. This discovery enhances understanding of the genetic basis of this rare condition.

New research identifies platelet gene signatures that can detect pulmonary artery stenosis in patients with pulmonary hypertension. This discovery could enhance diagnostic accuracy and patient management in this challenging condition.

A recent case study highlights a successful surgical repair of a late-presenting aortopulmonary window in a patient with severe pulmonary hypertension. This breakthrough suggests potential for reversing previously deemed irreversible conditions.

A recent study published in PubMed examines the impact of pulmonary veno-occlusive disease on posttransplant survival rates in patients with pulmonary hypertension. The findings highlight the need for tailored posttransplant management strategies for this patient population.

Not rare diseases news,
news about your rare disease.