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To support families affected by 3q29 deletion and duplication syndromes through advocacy, research, and community building.
The 3q29 Foundation was created by families, advocates, and researchers of this rare genetic syndrome. With a Board of Directors, Scientific Advisory Board, and Advisory Group, they're a committed team of volunteers ready to remove the obscurity from this genetic syndrome.
Website
www.3q29.org/Listed on Kisho — Trusted Rare Disease Intelligence
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