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DEBRA UK is a patient support organization for individuals affected by epidermolysis bullosa (EB), providing practical, emotional, and financial support, as well as funding research into treatments and cures for EB.
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Listed on Kisho — Trusted Rare Disease Intelligence
Association for Glycogen Storage Disease (UK) Ltd
Canadian Association of Pompe
Chelsea’s Hope Lafora Children Research Fund
Children’s Fund for Glycogen Storage Disease Research, Inc.