NONPROFIT OTHER
The International FOXG1 Foundation raises awareness and provides support for families affected by FOXG1 Syndrome, offering resources and a community for those impacted by this rare genetic condition.
Listed on Kisho — Trusted Rare Disease Intelligence
International Prader-Willi Syndrome Organisation
International Rett Syndrome Foundation
National Organization For Rare Disorders
PRISMS (Parents & Researchers Interested in Smith-Magenis Syndrome)