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Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
Beyond Batten Disease Foundation is dedicated to advancing treatment for juvenile Batten disease through research and collaboration with various organizations, aiming to improve the lives of affected children and their families.
Beyond Celiac is a nonprofit organization focused on advancing research, raising awareness, and providing resources for individuals living with celiac disease.
The BHD Foundation provides support and information for individuals affected by Birt-Hogg-Dubé syndrome, a rare genetic condition that can lead to lung and kidney issues. They aim to raise awareness and connect the BHD community while working towards treatments and a potential cure.
The Birdshot Uveitis Society of North America (BUSNA) is a nonprofit organization that supports individuals diagnosed with Birdshot Uveitis and raises funds for research related to this rare autoimmune disease.
RDCP:PAG0000276
Birth Defect Research for Children (BDRC) is dedicated to helping families find answers and support related to birth defects and childhood disabilities through research, education, and advocacy.
Birth to Three is a non-profit organization that provides therapy and early education services for infants and toddlers with developmental delays or disabilities, supporting their families in South King and Pierce Counties in Washington state.
Bisous For Léo raises funds to benefit the INADcure Foundation, which is dedicated to funding scientific research for treatments and a cure for INAD and other forms of PLA2G6-related neurodegeneration.
The Blanche Fischer Foundation supports low-income Oregonians with permanent physical disabilities by providing grants for assistive devices, home modifications, and other resources to promote independence.
The Blind Children's Center provides inclusive, family-focused early childhood education for infants, toddlers, and preschoolers, with a specialized focus on children who are blind or visually impaired.
Blind Citizens Australia is the national representative organization for people who are blind or vision impaired, focusing on informing, connecting, and empowering individuals and advocating for their rights.
BMT InfoNet provides support and resources for individuals considering or undergoing bone marrow, stem cell, or CAR T-cell therapy, helping them understand the process and connect with others for peer support.
The Bloom Syndrome Association is a nonprofit organization that connects, educates, and supports the international Bloom syndrome community while promoting research for better health outcomes.
Weill Cornell Medicine is dedicated to providing exceptional patient care, advancing research in various health challenges, and educating future healthcare leaders.
RDCP:PAG0000032
The Bloom Syndrome Association is a nonprofit organization that connects, educates, and supports the international Bloom syndrome community while promoting research for better health outcomes.
The organization focuses on raising awareness and funding research for kernicterus, supporting families affected by the condition through donations and partnerships.
Camp Boggy Creek provides a free camp experience for children with serious medical illnesses, offering them a chance to enjoy fun activities and make friendships while receiving medical care.
The Bohring-Opitz Syndrome Foundation, Inc. supports families living with Bohring-Opitz Syndrome (BOS) by providing financial scholarships, organizing family meet-ups, and promoting awareness and research.
The Bone Marrow & Cancer Foundation provides support services for cancer and transplant patients, including referrals, mental health support, and financial assistance, all offered free of charge.
RDCP:PAG0000033
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