Born a Hero, Research Foundation is dedicated to improving the quality of life for patients with FGFR syndromes through innovation and research.

BostonSight is dedicated to restoring sight and improving the quality of life for patients suffering from cornea diseases and dry eyes through innovative treatments and educational programs.

The organization supports research and awareness for mental health disorders, including schizophrenia and related conditions.

The Brain Injury Association of America (BIAA) supports individuals affected by brain injuries through advocacy, education, and resources, while also providing professional training and certification programs.

The Brain Tumour Foundation of Canada supports individuals affected by brain tumours through education, resources, and funding for research.

BANA UK (British Acoustic Neuroma Association) provides support and information for individuals affected by Acoustic Neuroma, including resources for patients and their families.

The British Liver Trust focuses on improving liver health and supporting those affected by liver conditions, including liver cancer.

The British Polio Fellowship is dedicated to supporting and empowering people in the UK living with the late effects of polio and post-polio syndrome (PPS) by providing information, welfare, and support services.

The British Porphyria Association is a national charity that supports and educates individuals affected by porphyria, aiming to improve their lives through information, community, and advocacy.

The CACNA1A Foundation is dedicated to supporting individuals and families affected by CACNA1A variants, funding research to find treatment options and a cure for related neurodegenerative diseases.

The CADASIL Eradication Project supports genomic research aimed at finding treatments for CADASIL and related small vessel diseases.

The CAMK2 Therapeutics Network is a family-led initiative focused on improving the lives of individuals affected by CAMK2 gene-related disorders through education, research, and access to expert care.

CURED is a not-for-profit foundation dedicated to supporting individuals suffering from Eosinophilic Gastrointestinal Diseases (EGID), including eosinophilic esophagitis, gastritis, and colitis, through research funding, advocacy, and education.

The Campbell Burns Metabolic Trust is a charity that supports families of children aged ten and under who have been diagnosed with a metabolic disorder.

Camp Twin Lakes provides camp experiences for children living with serious illnesses, disabilities, and life challenges, helping them to discover new strengths and feel understood.

The Canadian Addison Society provides advocacy, education, and support for individuals living with Addison's disease and other forms of adrenal insufficiency.

The Angelman Syndrome Foundation Canada provides support and resources for families affected by Angelman syndrome through various initiatives, including a Family Fund and Angelman Clinics.

Inclusion Canada is the national federation advocating for people with intellectual disabilities and their families, providing support for disability benefits and promoting inclusion and human rights.

The Canadian Association of Pompe supports Pompe disease patients and their families in Canada through education, support, and community engagement.