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Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
The Giving Back Fund is a national non-profit organization that facilitates charitable giving by professional athletes, celebrities, and high-net-worth individuals, providing philanthropic consulting and management services.
Chelsea's Hope Lafora Children Research Fund is dedicated to improving the lives of those affected by Lafora disease through awareness, family connection, and funding research for treatments.
CHES Foundation is a national non-profit organization focused on providing education and support for individuals with rare bleeding disorders, including Inhibitors and women affected by these conditions.
CC4C is a nonprofit organization dedicated to improving the quality of life for Texas children living with rare and undiagnosed medical conditions by providing financial assistance, wellness programs, and community support.
RDCP:PAG0000269
Childhood Cancer Canada supports children with cancer and their families through compassionate care programs, research investment, and public awareness initiatives.
The Childhood Dementia Initiative focuses on raising awareness and transforming research, care, and policy responses for children suffering from over 100 genetic conditions that cause childhood dementia.
The Childhood Eye Cancer Trust is the UK’s only charity dedicated to supporting children, families, and adults affected by retinoblastoma, providing lifelong support, raising awareness, and funding vital research.
Children's Hospital Colorado provides specialized pediatric care for a wide range of health issues, including cancer treatment, bone and joint care, and respiratory issues, among others.
Child Neurology Foundation supports children and families living with neurologic conditions by providing information, education, and one-on-one support.
The Children's Brain Tumor Foundation supports families affected by pediatric brain and spinal cord tumors through various programs, resources, and community-building activities.
The Children's Brittle Bone Foundation supports research and treatment for Osteogenesis Imperfecta (OI) and organizes fundraising events to assist those affected by the condition.
The Children's Cancer & Blood Foundation supports children and families affected by childhood cancer and blood diseases through clinical care, research, and training of healthcare professionals.
RDCP:PAG0000042
The Children's Cardiomyopathy Foundation supports families affected by childhood cardiomyopathy through research funding, educational resources, and community connections.
Children's Craniofacial Association supports and inspires individuals and families affected by facial differences.
The Children's Fund for Glycogen Storage Disease Research is dedicated to funding research and improving the quality of life for children affected by Glycogen Storage Disease Type 1 (GSD1). They support medical advances and community awareness to help find a cure.
The Children's Gaucher Research Fund is a charitable organization that raises funds to support research aimed at finding a cure for Type 2 and Type 3 Gaucher Disease.
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The Children’s Leukemia Research Association supports research efforts to find cures for leukemia and provides financial assistance to families facing the costs of treatment.
Children’s Liver Disease Foundation is dedicated to fighting all childhood liver diseases by providing information, emotional support, research funds, and advocacy for affected families.
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