Kisho is an information platform, not a medical provider. Nothing on this site constitutes medical advice, diagnosis, or treatment recommendations. All content is aggregated from publicly available sources (including ClinicalTrials.gov, PubMed, FDA.gov, and Orphanet) and is provided for informational purposes only. Clinical trial eligibility, treatment decisions, and any health-related actions should always be discussed with a qualified healthcare professional. Kisho does not endorse any specific therapy, organization, or clinical trial. Terms of use · Privacy policy
Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
The Dattoli Cancer Foundation provides information, support, and resources for individuals affected by prostate cancer, aiming to raise awareness and foster research for better diagnostic tools and treatment options.
Cleveland Clinic is a leading academic medical center that provides comprehensive healthcare services, focusing on patient-centered care and innovative treatments across various diseases and conditions.
DBAS UK is a charity dedicated to supporting families affected by Diamond Blackfan Anaemia Syndrome through resources, community support, and funding research for better treatments.
RDCP:PAG0000067
The DCM Foundation supports individuals affected by Dilated Cardiomyopathy (DCM) through education, genetic testing, and patient support services.
DDC Clinic is a non-profit organization dedicated to enhancing the quality of life for individuals with rare genetic disorders through personalized patient care, research, and education.
RDCP:PAG0000068
The DDX3X Foundation is dedicated to advancing research and providing support for individuals affected by DDX3X Syndrome, a rare genetic condition that primarily impacts girls and is linked to various intellectual disabilities.
DEBRA UK is a patient support organization for individuals affected by epidermolysis bullosa (EB), providing practical, emotional, and financial support, as well as funding research into treatments and cures for EB.
RDCP:PAG0000069
Defeat MSA Alliance is a charity organization dedicated to supporting patients with Multiple System Atrophy (MSA) through education, advocacy, and funding research for effective treatments.
The Degos Disease Foundation supports patients affected by Degos disease, providing resources, advocacy, and information for patients, families, and healthcare professionals.
The Described and Captioned Media Program provides accessible educational videos and teaching tools for families and educators of students with disabilities, focusing on enhancing learning through captioning, audio description, and American Sign Language.
RDCP:PAG0000070
The Desmoid Tumor Research Foundation is dedicated to advancing research, advocacy, awareness, and support for patients with desmoid tumors, aiming to find more treatments and ultimately a cure.
RDCP:PAG0000071
DESSH is a patient advocacy group supporting patients and caregivers affected by DeSanto-Shinawi Syndrome, a rare neurodevelopmental genetic syndrome.
The DHPS Foundation focuses on identifying and assisting individuals with rare genetic disorders, particularly DHPS deficiencies, while collaborating with researchers to develop treatment options.
Diabetes New Zealand is a Charitable Trust that supports people living with diabetes by providing information and resources to help manage diabetes symptoms and ensure equitable access to quality diabetes care and education.
Diabetes UK is a charity that supports individuals affected by diabetes through education, research funding, and community support services.
RDCP:PAG0000072
The Diann Shaddox Foundation advocates for individuals affected by Essential Tremor, focusing on research for new therapies and a cure while promoting awareness and support within the community.
The Health and Medicine Counsel supports healthcare and health education organizations by providing advocacy, treatment development, and public policy guidance.
The Disability Law Center is a non-profit organization that advocates for the legal rights and opportunities of individuals with disabilities in Utah, providing services related to accessibility, community living, education, employment, and more.
DREDF is a national civil rights law and policy center that advocates for the rights of people with disabilities through legal advocacy, education, and public policy development.
Disability Rights Idaho advocates for the rights of individuals with disabilities in Idaho, providing legal services, information, and referrals to help them navigate their rights and access necessary support.
Run a patient organization? Claim your profile or register a new one.