Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
Each group is verified to help you connect with confidence.
Organizations keep their identity even when websites change.
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Encephalitis411 is dedicated to supporting individuals affected by encephalitis through advocacy, education, and free resources, while raising awareness about the disease and its impacts.
RDCP:PAG0000260
The Endometriosis Association provides support, advocacy, education, and resources for women and teens affected by endometriosis, a chronic and painful disease.
The Endometriosis Research Center (ERC) is dedicated to improving the lives of individuals affected by endometriosis through awareness, research, and education.
Equip for Equality is a legal advocacy organization that empowers people with disabilities in Illinois to advocate for their rights and provides resources to help them navigate issues related to education, employment, and discrimination.
The Erb's Palsy Group raises awareness and provides support for families affected by Erb's Palsy through education, advocacy, and community events.
RDCP:PAG0000080
EC Aware supports those affected by Esophageal Cancer and promotes awareness of esophageal health.
The European Chromosome 11 Network supports individuals and families affected by Jacobsen Syndrome and other chromosome 11 disorders by providing resources, fostering connections, and raising awareness.
L'Association ELA supports families affected by leukodystrophies and funds research to combat these diseases.
RDCP:PAG0000268
The European Organisation for Research and Treatment of Cancer (EORTC) focuses on improving cancer treatment and research through clinical trials and collaboration among a network of members across various countries.
The European Society for Immunodeficiencies (ESID) is a non-profit association dedicated to improving knowledge in the field of Primary Immunodeficiency (PID) through research, education, and collaboration among healthcare professionals.
The Eye Cancer Foundation supports research and education related to eye cancers, providing resources and training for ophthalmologists and patients affected by ocular tumors.
Fondazione FIRMO is dedicated to combating bone diseases, providing resources for diagnosis and treatment, and promoting awareness and research in the field of rare bone conditions.
RDCP:PAG0000082
FACES: The National Craniofacial Association provides financial aid for medical travel and support for children and adults with craniofacial disorders.
The FCS Foundation provides support and resources for patients and caregivers affected by Familial Chylomicronemia Syndrome (FCS), promoting advocacy and education.
RDCP:PAG0000087
The Family Heart Foundation is dedicated to saving families from heart disease through awareness, early diagnosis, and education about familial hypercholesterolemia and high lipoprotein(a).
The FOD Family Support Group is a volunteer organization that provides support and awareness for families affected by Fatty Oxidation Disorders.
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