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Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
FRAXA Research Foundation is dedicated to finding effective treatments and a cure for Fragile X syndrome, funding research grants and clinical trials to support this mission.
RDCP:PAG0000274
RDCP:PAG0000091
FARA supports research and advocacy for Friedreich's Ataxia, aiming to fund and facilitate treatments to slow, stop, reverse, and cure the disease.
Friends of Cancer Research is dedicated to advancing cancer research and policy to expedite life-saving treatments for patients through collaboration across various healthcare sectors.
FODAC is a non-profit organization that recycles home medical equipment and assistive technology, dedicated to serving individuals with disabilities by providing free or low-cost equipment and services to enhance their quality of life.
The FSHD Society is the world's largest advocacy and research organization for facioscapulohumeral muscular dystrophy (FSHD), providing support, resources, and advancing research for affected families.
Fundación FOP raises awareness about Fibrodysplasia Ossificans Progressiva (FOP) and provides resources to help families cope with the challenges of this rare and disabling disease.
This organization advocates for individuals with dystonia, providing specialized care, treatment access, and support to improve their quality of life.
RDCP:PAG0000259
The Galactosaemia Support Group provides support and resources for families affected by galactosaemia, facilitating connections among members and offering educational materials and events.
RDCP:PAG0000092
The Galactosemia Foundation advocates for individuals with galactosemia and their families, providing resources and support while connecting families with clinicians and researchers.
Gallaudet University is a leading institution for the deaf and hard of hearing, providing innovative educational programs and a vibrant community focused on bilingualism in ASL and English.
RDCP:PAG0000093
The Gallbladder Cancer Foundation is a nonprofit organization that provides resources and support to patients and caregivers affected by gallbladder cancer, while also raising funds for research to develop better treatments and find cures.
The GI Research Foundation supports research and patient care for individuals with digestive diseases, funding innovative projects and providing educational resources.
RDCP:PAG0000094
The organization supports individuals affected by Gaucher disease through peer support, education, advocacy, and various resources.
The Gauchers Association provides support and advice to patients and their families affected by Gaucher Disease, promotes research, and offers educational opportunities to healthcare professionals.
RDCP:PAG0000095
The GBS/CIDP Foundation International supports individuals affected by Guillain-Barré Syndrome, Chronic Inflammatory Demyelinating Polyneuropathy, and Multifocal Motor Neuropathy by providing information, advocacy, and opportunities for community involvement.
Gene People provides support and information for individuals and families affected by genetic conditions, offering a helpline service to help cope with the challenges these conditions present.
Genetic Alliance Australia provides support, information, and connection for individuals and families affected by rare genetic conditions and rare diseases.
Genetic Alliance UK is a charity that supports families affected by rare, genetic, or undiagnosed conditions, working to improve their lives through advocacy and resources.
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