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Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
The Genetic Support Network of Victoria provides support and resources for individuals and families affected by genetic, rare, and undiagnosed conditions, facilitating connections and access to services.
The Geneva Centre for Autism provides programs and services for individuals with autism, including support for children, teens, and adults in areas such as communication, life skills, and social engagement.
The Gerontological Society of America is dedicated to advancing the field of aging through education, advocacy, and research, providing resources and networking opportunities for professionals in gerontology.
Roswell Park Comprehensive Cancer Center is a leading cancer treatment facility that provides comprehensive care, innovative treatments, and survivorship programs for various types of cancer.
GIST Support International provides support and resources for patients and caregivers affected by Gastrointestinal Stromal Tumor (GIST), helping them navigate their disease and connect with others in the community.
Give an Hour is a national organization dedicated to transforming mental health by providing support to individuals impacted by human-made trauma through innovative and empowering approaches.
The Glaucoma Research Foundation is dedicated to funding research and providing resources to help patients understand and manage glaucoma, with a focus on finding a cure.
The Glioblastoma Foundation focuses on funding research and developing drug therapies for glioblastoma, aiming to transform the standard of care for this aggressive brain cancer.
GRASP is a non-profit organization that supports the Autistic and Neurodivergent community by providing affordable autism assessments, coaching, and consulting services.
The Global Foundation for Peroxisomal Disorders supports families affected by peroxisomal disorders, including Peroxisome Biogenesis Disorder-Zellweger Spectrum Disorder, by funding research and providing educational resources and support services.
GHLF is a patient advocacy organization that supports individuals with chronic conditions, particularly arthritis, by providing education, resources, and a platform for patient voices in healthcare.
Global Liver Institute empowers patient advocates to collaborate with policymakers and clinicians to improve liver health and address liver diseases.
RDCP:PAG0000096
The GLUT1 Deficiency Foundation supports the GLUT1 Deficiency community through awareness, education, advocacy, and research, aiming to improve diagnosis, treatment, and quality of life for those affected by this rare genetic condition.
The GNB1 Advocacy Group supports families affected by the rare genetic disorder GNB1 by raising awareness, advancing research, and providing resources and a community for those impacted.
Goldenhar UK supports individuals and families affected by Goldenhar syndrome and craniofacial microsomia by providing advice, resources, and a community to improve their quality of life.
RDCP:PAG0000097
The Gorlin Syndrome Alliance supports individuals affected by Gorlin syndrome through education, research funding, and community connection.
GPT2Deficiency.org advocates for individuals and families affected by GPT2 Deficiency, a rare genetic disorder, by supporting research and improving care standards.
RDCP:PAG0000273
Grace Science Foundation is dedicated to finding a cure for NGLY1 Deficiency and supports research that may benefit those suffering from various diseases.
The Graves' Disease and Thyroid Foundation empowers patients living with Graves' Disease and Thyroid Eye Disease by providing expert-vetted resources and a supportive community.
RDCP:PAG0000098
The GRIN2B Foundation supports individuals affected by GRIN2B-related disorders by providing resources, information, and a patient registry for research and community engagement.
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