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Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
Guide Dogs of America provides service dogs for individuals who are blind/visually impaired, veterans, and children with autism, enhancing their confidence, mobility, and independence.
Guiding Eyes for the Blind provides guide dogs to people with vision loss, offering all services completely free of charge.
GAIN Charity is dedicated to supporting individuals affected by Guillain-Barré Syndrome (GBS), CIDP, MMN, and other related inflammatory neuropathies, offering services such as peer support, personal grants, and information resources.
RDCP:PAG0000099
Gut Check Foundation is a nonprofit organization dedicated to promoting education and research on the prevention and treatment of Clostridium septicum infections, particularly in immunocompromised individuals such as cancer and diabetes patients.
RDCP:PAG0000100
The Guthy-Jackson Charitable Foundation focuses on funding research and advocacy for NeuroMyelitis Optica and its Spectrum Disorders, aiming to find life-saving cures and improve patient lives.
RDCP:PAG0000101
HCU Network America provides resources and support for patients and families affected by Homocystinurias, advocating for better diagnosis and treatment options.
HCU Network Australia is a health promotion charity focused on improving health outcomes for individuals with Classical Homocystinuria (HCU) through education, research, and support.
This organization supports individuals affected by craniosynostosis and other rare craniofacial conditions, providing resources and confidential support.
The Healing Exchange BRAIN TRUST provides support to individuals affected by brain tumors through online support groups, fostering a community for sharing experiences and coping strategies.
Healing the Children Northeast provides free surgical, dental, and medical treatment for underserved children globally through various programs, including medical teams abroad and an international inbound program.
The Health Resources and Services Administration (HRSA) provides a variety of health services, including support for maternal mental health, HIV care, and access to health centers for underserved communities.
Hearing Health Foundation (HHF) is dedicated to preventing and curing hearing loss and tinnitus through research and promoting hearing health.
The Hearing Loss Association of America (HLAA) provides education, advocacy, and support for individuals with hearing loss, helping them thrive in their daily lives.
The Heart Foundation is dedicated to improving heart health for Australians by providing resources, support programs, and funding research to combat heart disease.
Help Hope Live is a nonprofit organization that provides fundraising support for individuals facing medical expenses not covered by insurance.
RDCP:PAG0000102
Helping Hands for GAND supports individuals and families affected by GATAD2B-associated neurodevelopmental disorder (GAND), focusing on increasing awareness and promoting research and treatment opportunities.
Envisioning Access supports individuals with physical disabilities by improving mobility, access, and quality of life through advocacy and innovative technology solutions.
RDCP:PAG0000103
The Hemophilia Federation of America supports individuals and families affected by bleeding disorders through education, advocacy, and community events.
The Hemophilia Foundation of Southern California is a leading resource for individuals affected by bleeding disorders, providing education, advocacy, and support services across nine counties in Southern California.
Henshaws supports people living with sight loss and a range of other disabilities, providing services such as education, arts and crafts, and support programs to help individuals achieve their ambitions.
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